CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1271
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09643 Fatigue Severity Scale (FSS) - frequent problem scale

Scale used to describe the extent to which fatigue caused frequent problems for the patient in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition.

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10596 Imaging slice over sampling value

Value of the slice over sampling (as a percentage) used in imaging acquisition

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11589 Caregiver Burden Scale (CGBS) - mentally trying care relative scale

Scale of subject/participant's finding of mentally trying to take care of the relative as part of Caregiver Burden Scale form

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10998 Cardiovascular end diastolic volume measurement

Value, in mL, of the end-diastolic volume, as part of myocardial oxygen consumption.

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10891 Basal metabolic rate

Basal Metabolic Rate (BMR) is the Resting Energy Expenditure (REE) measured upon awakening after an overnight fast

 Exploratory Resting Energy Expenditure False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11597 Caregiver Burden Scale (CGBS) - environment factor mean value

Environment factor is calculated value obtained as the mean value of questions 9, 15, and 17 (range 1-4)

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09360 Hamilton Depression Rating Scale (HDRS) - anxiety somatic indicator

Score for the participant/subject's grade of symptoms of somatic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI).

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09368 Hamilton Depression Rating Scale (HDRS) - guilty mind indicator

Score for the presence, qualities, and strength of the participant/subject's guilty feelings, if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11638 Checklist Individual Strength (CIS20R) - task focus ability scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: When I am doing something, I can keep my thoughts on it. Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09376 Hamilton Depression Rating Scale (HDRS) - total score

Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11573 Caregiver Burden Scale (CGBS) - responsibility relative welfare scale

Scale of thinking of having to shoulder too much responsibility for the relative's welfare as part of Caregiver Burden Scale form

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11646 Checklist Individual Strength (CIS20R) - tire easily scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I tire easily. Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11581 Caregiver Burden Scale (CGBS) - embarrassed relative behavior scale

Scale of subject/participant's feeling of being embarrassed by the relative's behavior as part of Caregiver Burden Scale form

 Exploratory Caregiver Burden Scale (CGBS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11654 Checklist Individual Strength (CIS20R) - activity total score

Sum of items 7, 10, 17 (range 3-21). Part of the Checklist Individual Strength (CIS20R) questionnaire.

 Exploratory Checklist for Individual Strength - Fatigue (CIS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times.

 Exploratory Grip Strength False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition.

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition.

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18720 Imaging visual analysis location performed other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 101 - 125 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.