CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 76 - 100 of 1271
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12024 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - performed date

Date Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) was performed

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11646 Checklist Individual Strength (CIS20R) - tire easily scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: I tire easily. Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11016 Polysomnography nocturnal oximetry end date and time

Date and time of the end of nocturnal oximetry.

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09645 Fatigue Severity Scale (FSS) - interfere duty responsibility scale

Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)

Exploratory Fatigue Severity Scale (FSS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11654 Checklist Individual Strength (CIS20R) - activity total score

Sum of items 7, 10, 17 (range 3-21). Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11572 Caregiver Burden Scale (CGBS) - isolated relative problem scale

Scale of feeling lonely and isolated because of the relative's problem as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18716 Imaging scanner manufacturer other text

The free-text field related to 'Imaging scanner manufacturer name' specifying other text. Name of manufacturer of imaging scanner

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11580 Caregiver Burden Scale (CGBS) - feel tied down relative problem scale

Scale of subject/participant's feeling of tied down by the relative's problem as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11006 Vascular partial pressure carbon dioxide maximum value

Value, as mmHg, of the maximum partial pressure carbon dioxide (pCO2), as part of Gas Exchange.

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11880 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - stand up walk 3 meters time value

Time it took the participant to stand up and walk 3 meters as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA)

Exploratory Madrid Quantitative Neuromuscular Assessment (MAQUINA) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11588 Caregiver Burden Scale (CGBS) - economic sacrifice relative care scale

Scale of subject/participant's feeling of having experienced economic sacrifice because of taking care of the relative as part of Caregiver Burden Scale form

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11638 Checklist Individual Strength (CIS20R) - task focus ability scale

Scale assessing the extent to which the following statement has been true for the participant during the last two weeks: When I am doing something, I can keep my thoughts on it. Part of the Checklist Individual Strength (CIS20R) questionnaire.

Exploratory Checklist for Individual Strength - Fatigue (CIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09374 Hamilton Depression Rating Scale (HDRS) - retardation indicator

Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)

Exploratory Hamilton Depression Rating Scale (HDRS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Fatigue Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11596 Caregiver Burden Scale (CGBS) - emotional involvement factor mean value

Emotional involvement factor is calculated value obtained as the mean value of questions 6, 11, and 16 (range 1-4)

Exploratory Caregiver Burden Scale (CGBS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11008 Vascular partial pressure carbon dioxide four hour period maximum value

Value, as mmHg, of the 4-hour maximum partial pressure carbon dioxide (pCO2), as part of Gas Exchange.

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11137 Medication withheld duration

Duration, in hours and minutes, medication withheld from the participant/subject

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 76 - 100 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.