CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2746-C11927	C11927	Modified Fatigue Impact Scale (MFIS) - trouble concentrate score	Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0973-C10843	C10843	Imaging analysis software version number	The version number of the software used for quantitative analysis of the imaging study	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C18815	C18815	Spectroscopy spectral fit software used other text	The free-text field related to 'Spectroscopy spectral fit software used type' specifying other text. Type of the spectral fit software used	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1591-C54467	C54467	Functional Gait Assessment (FGA) - Total score	Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)	Supplemental	Dynamic Gait Index (DGI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C21900	C21900	Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator	Indicator whether the subject is hopeful about the future (long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0957-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F2746-C17825	C17825	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale	Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11107	C11107	Pulmonary function peak expiratory flow result value	Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration	Supplemental	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0976-C08241	C08241	Imaging field of view axis 1 measurement	Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1005-C21909	C21909	Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator	Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)	Supplemental	Geriatric Depression Scale (GDS)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0975-C10945	C10945	Imaging voxel volume measurement	Volume of the voxel calculated by multiplying the three size measurements	Supplemental	Magnetic Resonance Spectroscopy	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C11123	C11123	Bulbar lower motor neuron electromyogram indicator	Indicator of whether an electromyogram (EMG) of the bulbar region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots	Supplemental	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0978-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C17794	C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1017-C17784	C17784	Fixed dynamometry time	Time the fixed dynamometry was performed on the participant/subject	Supplemental	Fixed Dynamometry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10763	C10763	Electromyography conduction block evidence indicator	Indicator whether there are areas of focal conduction slowing or loss of compound motor action potential amplitude unexplained by nerve compression found by nerve conduction study (NCS)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0963-C17814	C17814	Lab test antibody result	Result of the antibody laboratory test	Supplemental	Laboratory Tests	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0961-C11046	C11046	Fasciculations abdominal wall status	Status, as presence or absence, of abdominal wall fasciculations	Supplemental	Neuromuscular Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1591-C54445	C54445	Functional Gait Assessment (FGA) - Gait level surface task score	Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)	Supplemental	Dynamic Gait Index (DGI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0977-C10782	C10782	Electrophysiology motor unit number estimation method used type	Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0974-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Diffusion Tensor Imaging (DTI)	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.