CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 1271
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.

Core Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems.

Core Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12029 Written Verbal Fluency Test (WVFT) - index value

Value of the Written Verbal Fluency Index, calculated by subtracting the time taken to copy the words from 9 minutes, then dividing the resulting time by the number of legitimate words

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10172 Forced vital capacity result

Value representing the Forced Vital Capacity (FVC), in Liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation.

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19517 Positive gene type

Type of gene found to be positive after screening

Core Genetics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10813 Adopted indicator

Whether the subject/participant was adopted

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11989 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - total score

Total score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle.

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11981 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - cutting food and handling utensils with gastronomy score

Cutting food and handling utensils score for patients with gastrostomy on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11966 Tardieu Scale muscle reaction angle measurement

The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject.

Core Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12024 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - performed date

Date Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) was performed

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing.

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11974 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respondent type

The person completing the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11982 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - dressing hygiene score

Dressing and hygiene score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11124 El Escorial revised criteria indicator

Indicator of El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis (ALS) category of diagnostic certainty or confidence.

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath.

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems.

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 26 - 50 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.