C01012
Physical exam body system result type
Assessment result of each body system examined
Core
Physical Examination
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00722
Family history medical condition relative type
Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject
Core
Family History
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C10177
Slow vital capacity percent of predicted normal value
Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath
Core
Pulmonary Function
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C08007
Diagnosis first given date and time
Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder
Core
Symptom, Sign, Diagnosis Criteria
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11983
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - turning in bed adjusting bed clothes score
Turning in bed and adjusting bed clothes score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)
Core
ALS Functional Rating Scale - Revised (ALSFRS-R)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01522
Height measurement
Measurement of participant's/subject's height
Core
Vital Signs
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00020
Ethnicity USA category
Category of ethnicity the participant/subject most closely identifies with
Core
General Core
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01581
Weight unit of measure
Unit of measure for the weight numerical value
Core
Vital Signs
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C18816
Manual muscle testing position other text
The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment
Core
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11975
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - speech score
Speech score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)
Core
ALS Functional Rating Scale - Revised (ALSFRS-R)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00317
Medical history condition start date and time
Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history
Core
Medical History
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01013
Physical exam description text
Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined
Core
Physical Examination
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11098
Pulmonary function test date and time
Date the pulmonary function test was performed
Core
Pulmonary Function
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11119
Body part first affected text
Identification of the body part(s) first affected by the disease
Core
Symptom, Sign, Diagnosis Criteria
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
Demographics
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01565
Blood pressure systolic measurement
Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)
Core
Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11984
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - walking score
Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)
Core
ALS Functional Rating Scale - Revised (ALSFRS-R)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00030
Race USA category
The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories
Core
General Core
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01582
Height unit of measure
Unit of measure for the height numerical value for subject/participant
Core
Vital Signs
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11976
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - salivation score
Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)
Core
ALS Functional Rating Scale - Revised (ALSFRS-R)
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C19515
Gene screened type
Type of genes screened for mutations in patient
Core
Genetics
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C12025
Written Verbal Fluency Test (WVFT) - write letter S word five minute count
Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes
Core
Written Verbal Fluency Test
True
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C01015
Physical exam performed indicator
Indicator of whether a physical exam was performed on the participant/subject
Core
Physical Examination
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C11099
Pulmonary function test type
Type of pulmonary function testing performed
Core
Pulmonary Function
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis
C00020
Ethnicity USA category
Category of ethnicity the participant/subject most closely identifies with
Core
Demographics
False
Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis