CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1271
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11984 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - walking score

Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01541 Weight measurement

Measurement of participant's/subject's weight

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11976 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - salivation score

Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C05404 Symptom onset date and time

Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11985 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - climbing stairs score

Climbing stairs score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12025 Written Verbal Fluency Test (WVFT) - write letter S word five minute count

Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11977 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - swallowing score

Swallowing score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01012 Physical exam body system result type

Assessment result of each body system examined

Core Physical Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Core Family History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11986 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - dyspnea score

Dyspnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Core Written Verbal Fluency Test Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11978 Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - handwriting score

Handwriting score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

Core ALS Functional Rating Scale - Revised (ALSFRS-R) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11119 Body part first affected text

Identification of the body part(s) first affected by the disease.

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 1 - 25 of 1271

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.