CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0962-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00321	C00321	Medical history for body system indicator	Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0959-C19517	C19517	Positive gene type	Type of gene found to be positive after screening	Core	Genetics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0960-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0957-C10813	C10813	Adopted indicator	Whether the subject/participant was adopted	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0954-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01522	C01522	Height measurement	Measurement of participant's/subject's height	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C11104	C11104	Pulmonary function slow vital capacity (sVC) result value	Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0956-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0962-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for subject/participant	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1014-C10172	C10172	Forced vital capacity result value	Value representing the Forced Vital Capacity (FVC), in Liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0960-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0957-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
F0958-C11124	C11124	El Escorial revised criteria indicator	Indicator of El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis (ALS) category of diagnostic certainty or confidence	Core	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.