CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C01012	Physical exam body system result type	Assessment result of each body system examined	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C10177	Slow vital capacity percent of predicted normal value	Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11983	Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - turning in bed adjusting bed clothes score	Turning in bed and adjusting bed clothes score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)	Core	ALS Functional Rating Scale - Revised (ALSFRS-R)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01522	Height measurement	Measurement of participant's/subject's height	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C18816	Manual muscle testing position other text	The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11975	Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - speech score	Speech score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)	Core	ALS Functional Rating Scale - Revised (ALSFRS-R)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history	Core	Medical History	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11098	Pulmonary function test date and time	Date the pulmonary function test was performed	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11119	Body part first affected text	Identification of the body part(s) first affected by the disease	Core	Symptom, Sign, Diagnosis Criteria	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Core	Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11984	Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - walking score	Walking score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)	Core	ALS Functional Rating Scale - Revised (ALSFRS-R)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01582	Height unit of measure	Unit of measure for the height numerical value for subject/participant	Core	Vital Signs	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11976	Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - salivation score	Salivation score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)	Core	ALS Functional Rating Scale - Revised (ALSFRS-R)	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C19515	Gene screened type	Type of genes screened for mutations in patient	Core	Genetics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C12025	Written Verbal Fluency Test (WVFT) - write letter S word five minute count	Count of legitimate words beginning with the letter S written by the participant/subject in 5 minutes	Core	Written Verbal Fluency Test	True	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Core	Physical Examination	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C11099	Pulmonary function test type	Type of pulmonary function testing performed	Core	Pulmonary Function	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Amyotrophic Lateral Sclerosis	Amyotrophic Lateral Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.