CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11921 Modified Fatigue Impact Scale (MFIS) - muscle weak score

Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11916 Modified Fatigue Impact Scale (MFIS) - less motivate social activity score

Scale for having been less motivated to participate in social activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11910 Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score

Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11924 Modified Fatigue Impact Scale (MFIS) - difficult organize thought home work score

Scale for having had difficulty organizing thoughts when doing things at home or at work as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11919 Modified Fatigue Impact Scale (MFIS) - difficult make decision score

Scale for having had difficulty making decisions as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10824 Medication withheld prior to sample collection indicator

Indicator as to whether or not medications were withheld from the participant/subject prior to sample collection

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10825 Medication withheld prior sample collection name

Name of medication withheld prior to sample collection

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11137 Medication withheld duration

Duration, in hours and minutes, medication withheld from the participant/subject

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 151 - 175 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.