CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10629 Diary day falls experienced number

Number of falls the participant/subject experienced on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10628 Diary day falls status

Describes whether the participant/subject experienced falls on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10630 Diary day near falls experienced number

Number of near falls the participant/subject experienced on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10634 Diary month cramp severity category

Global severity rating of the cramps experienced by the participant/subject in the past 30 days

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54451 Dynamic Gait Index (DGI) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54453 Dynamic Gait Index (DGI) - Gait head turn vertical task score

Score for the subject/participant's performance on the Gait With Vertical Head Turns task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54449 Dynamic Gait Index (DGI) - Gait speed change task score

Score for the change in gait speed task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54466 Dynamic Gait Index (DGI) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54455 Dynamic Gait Index (DGI) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54458 Dynamic Gait Index (DGI) - Step around obstacle task score

Score for the subject/participant's performance on the Step Around Obstacles task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54457 Dynamic Gait Index (DGI) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54468 Dynamic Gait Index (DGI) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10871 Dynamometry hand held muscle test able to break technique indicator

Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10867 Dynamometry hand held muscle test performed anatomic site

The type of muscle tested using hand held dynamometry

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10865 Dynamometry hand held muscle test performed date

Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17790 Dynamometry hand held time

Time the hand held dynamometry was performed

 Supplemental Hand Held Dynamometry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Supplemental Social Status False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Core Social Status False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11124 El Escorial revised criteria indicator

Indicator of El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis (ALS) category of diagnostic certainty or confidence

 Core Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 51 - 75 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.