CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 708
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11122 Bulbar lower motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of lower motor neuron (LMN) dysfunction in the bulbar region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11123 Bulbar lower motor neuron electromyogram indicator

Indicator of whether an electromyogram (EMG) of the bulbar region found lower motor neuron dysfunction (LMN), defined as ongoing denervation and chronic renovation in two muscles innovated by different peripheral nerve and different nerve roots

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11121 Bulbar upper motor neuron clinical indicator

Indicator of whether the examination found clinical evidence of upper motor neuron (UMN) dysfunction in the bulbar region

Supplemental Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10822 Caffeine last consumed date and time

Date (and time, if applicable and known) the participant/subject last drank or otherwise consumed caffeine

Exploratory Fasting Information Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11000 Cardiovascular contractility measurement

Value, in mmHg/mL, of cardiac contractility, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10998 Cardiovascular end diastolic volume measurement

Value, in mL, of the end-diastolic volume, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10997 Cardiovascular left ventricular systolic pressure measurement

Value, in mmHg, of the left ventricular systolic pressure, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10999 Cardiovascular left ventricular wall thickness measurement

Value, in cm, of the left ventricular wall thickness, as part of myocardial oxygen consumption

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11004 Cardiovascular myocardial oxygen consumption calculation type

Type of calculation method used to obtain myocardial oxygen consumption (Mo2)

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11003 Cardiovascular myocardial oxygen consumption value

Value, in mL/100 g/min, calculated for myocardial oxygen consumption (Mo2)

Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10980 Childbearing potential indicator

Indicator of whether the participant/subject is of childbearing potential

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10982 Childbearing potential sterile reason

Explanation of why the female participant/subject is not of childbearing potential

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18818 Childbearing potential surgically sterile other text

The free-text field related to 'Childbearing potential surgically sterile type' specifying other text. Type of surgical procedure that rendered the participant/subject sterile

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10983 Childbearing potential surgically sterile type

Type of surgical procedure that rendered the participant/subject sterile

Supplemental Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10617 Clinical event or milestone date and time

Date (and time, if applicable and known) the participant/subject achieved the clinical event or milestone

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10615 Clinical event or milestone type

Type of clinical event or milestone pertinent to the disease or disorder

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10626 Condition diary date and time

Date (and time, if applicable and known) the diary data are recorded

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Symptom, Sign, Diagnosis Criteria Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17774 Diary cramps date

Date in the diary where the participant/subject was evaluated for the presence of cramps as part of the Clinical Milestones and Events questionnaire

Supplemental Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10633 Diary day cramps experienced number

Number of cramps the participant/subject experienced on a particular day

Exploratory Clinical Milestones/Events Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 26 - 50 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.