CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54447 Functional Gait Assessment (FGA) - Gait level surface task duration

Time taken by the subject/participant to ambulate 20 feet for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54445 Functional Gait Assessment (FGA) - Gait level surface task score

Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 Supplemental Dynamic Gait Index (DGI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21919 Geriatric Depression Scale (GDS) Long Form - Depression scale

Scale of depression based on scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21918 Geriatric Depression Scale (GDS) Long Form - Total score

Scored count of all depressive answers, as part of the Geriatric Depression Scale Long Form

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21916 Geriatric Depression Scale (GDS) Long Form - Clear mind indicator

Indicator whether the subject 'mind is as clear as it had used to be(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21915 Geriatric Depression Scale (GDS) Long Form - Decision easy indicator

Indicator whether the subject feels it is easy to make decisions(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21914 Geriatric Depression Scale (GDS) Long Form - Social gathering avoidance indicator

Indicator whether the subject prefers to avoid social gatherings(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21913 Geriatric Depression Scale (GDS) Long Form - Awake enjoy indicator

Indicator whether the subject enjoys getting up in the morning(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21912 Geriatric Depression Scale (GDS) Long Form - Concentration trouble indicator

Indicator whether the subject has trouble concentrating(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21911 Geriatric Depression Scale (GDS) Long Form - Crying indicator

Indicator whether the subject frequently feels like crying(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21909 Geriatric Depression Scale (GDS) Long Form - Little thing upset indicator

Indicator whether the subject frequently gets upset over little things(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21908 Geriatric Depression Scale (GDS) Long Form - Project new start difficulty indicator

Indicator whether the subject feels it is hard to get started on new projects(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21907 Geriatric Depression Scale (GDS) Long Form - Exciting life indicator

Indicator whether the subject finds life very exciting(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21906 Geriatric Depression Scale (GDS) Long Form - Past worry indicator

Indicator whether the subject is worried about the past a lot (long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21905 Geriatric Depression Scale (GDS) Long Form - Downhearted blue indicator

Indicator whether the subject often feels downhearted and blue (long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21904 Geriatric Depression Scale (GDS) Long Form - Future worry indicator

Indicator whether the subject is frequently worried about the future (long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21903 Geriatric Depression Scale (GDS) Long Form - Restless fidgety indicator

Indicator whether the subject often gets restless and fidgety(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21902 Geriatric Depression Scale (GDS) Long Form - Bothered indicator

Indicator whether the subject is bothered by the thoughts that can't get out of his or her head(long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C21900 Geriatric Depression Scale (GDS) Long Form - Future hopeful indicator

Indicator whether the subject is hopeful about the future (long form) (GDSLF)

 Supplemental Geriatric Depression Scale (GDS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19517 Positive gene type

Type of gene found to be positive after screening

 Core Genetics False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19516 Blood sample repository name

Name of repository to which the participant gave a blood sample

 Supplemental Genetics False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C19515 Gene screened type

Type of genes screened for mutations in patient

 Core Genetics False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18823 Body part first affected other text

The free-text field related to 'Body part first affected text' specifying other text. Identification of the body part(s) first affected by the disease

 Supplemental Symptom, Sign, Diagnosis Criteria False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18818 Childbearing potential surgically sterile other text

The free-text field related to 'Childbearing potential surgically sterile type' specifying other text. Type of surgical procedure that rendered the participant/subject sterile

 Supplemental Medical History False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 26 - 50 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.