CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 57153
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

 Supplemental Death Report 0 General (For all diseases) General (For all diseases)
C04802 Death date and time

Date (and time, if known) of participant's death

 Supplemental Death Report 0 General (For all diseases) General (For all diseases)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant's death

 Supplemental Death Report 0 General (For all diseases) General (For all diseases)
C02004 Study drug dispensed date and time

Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02005 Study drug returned date and time

Date (and time, if applicable and known) on which the study drug was returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02010 Study drug dosage form text

Text of dosage form used to administer study drug

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02018 Study drug dispensed count

Count of amount of study drug dispensed to the participant/subject

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02019 Study drug actual return count

Count of amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02020 Study drug expected returned count

Count of expected amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02021 Study drug expected taken count

Count of expected amount of study drug taken

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02007 Study drug dose

Dose of study drug taken per administration

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02009 Study drug end date and time

Date (and time, if applicable and known) the administration of the study drug ended

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02012 Study drug dose frequency

Frequency of use of study drug

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02017 Study drug start date and time

Date (and time, if applicable and known) on which the study drug usage begins

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02023 Study drug dose unit of measure

Unit of measure of the study drug dosage administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02026 Study drug dose unit of measure UCUM code

Code that represents the dosage unit of measure of the study drug administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01706 Lab test result text

Result of the laboratory test

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
Displaying 176 - 200 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.