CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 57130
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20342 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Shop travel without assistance indicator

Indicates if the child is able to shop and travel without assistance. For younger children, indicates if the child behave age appropriately outside the home

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20343 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current work school function pre-injury capacity indicator

Indicates if the child can function at work or in school at their previous capacity

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20344 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Work school restriction indicator

Indicates restrictions that apply to child's ability to work and study, including ability to work only in a sheltered workshop or non-competitive job, in a school setting for severely impaired children or tutored at home, or currently unable to work or go to school

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20350 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Family friendship psychological problem indicator

Indicates if there are psychological problems that have resulted in ongoing disruption with respect to either family or friendships

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20351 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent disruption family friendship type

The extent of disruption or strain in family and friendship due to injury

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C20352 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Return normal life other problem indicator

The indicator related to other problem in returning to normal life

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Acute Hospitalized
C07434 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Score

Score for the participant, as a part of the Pediatric Glasgow Outcome Scale - Extended (PGOSE)

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C18431 Pediatric Glasgow Outcome Scale - Extended, Pediatric Revision (GOS-E Peds) - date time

Date and time that the participant performed the Pediatric Glasgow Outcome Scale extended version, as a part of Pediatric Glasgow Coma Scale Extended (PGOSE)

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20338 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Information obtain type

The type as related to how the information was obtained

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20339 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Consciousness indicator

Indicator related to ability of the head-injured child to obey simple commands or say any words. For younger children, indicates ability to act/react/interact beyond reflexes

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20340 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Assistance home requirement indicator

Indicates if the assistance of another person at home is essential for some activities of daily living. For younger children, indicates if the child is dependent upon a caretaker more than it is expected based on age

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20341 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Frequent assistance home need indicator

Indicates if the child needs frequent help or for someone to be around at home most of the time. For younger children, indicates that the child needs frequent help from a caretaker to accomplish tasks relevant for his/her age

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20342 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Shop travel without assistance indicator

Indicates if the child is able to shop and travel without assistance. For younger children, indicates if the child behave age appropriately outside the home

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20343 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current work school function pre-injury capacity indicator

Indicates if the child can function at work or in school at their previous capacity

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20344 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Work school restriction indicator

Indicates restrictions that apply to child's ability to work and study, including ability to work only in a sheltered workshop or non-competitive job, in a school setting for severely impaired children or tutored at home, or currently unable to work or go to school

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20345 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Reduced work school capacity indicator

Indicates reduced work or school capacity for an injured child

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20346 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Current participation social leisure activity pre-injury indicator

Indicates if the child is able to resume regular social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20347 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity unable participate indicator

Indicator related to being unable to participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20348 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity much decrease participation indicator

Indicator related to being much less able to participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C20349 Pediatric Glasgow Outcome Scale - Extended (GOS-E Peds) - Extent restriction social leisure activity little decrease participation indicator

The indicator related to a bit less participate in social and leisure activities

 Basic Glasgow Outcome Scale Extended (GOSE) Pediatric Revision False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
Displaying 251 - 275 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.