CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 201 - 225 of 57723

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C19247	Subject ID	Subject identification ID	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19179	Pre spinal cord lesion endocrine metabolic condition diagnosed type	Type of endocrine & metabolic condition diagnosed before spinal cord lesion	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19201	Pre spinal cord lesion endocrine metabolic condition diagnosed other text	The free text field related to "Pre spinal cord lesion endocrine metabolic condition diagnosed type" specifying the other text. Type of pre spinal cord lesion endocrine & metabolic condition	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19202	Pre spinal cord lesion neuro-musculoskeletal history type	Type of neuro-musculoskeletal history prior to spinal cord lesion	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19203	Pre-existing congenital deformity specify diagnosis name	Specifies name of pre-existing congenital deformity of the spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19204	Pre-existing congenital deformity specify anatomic site	Anatomic site of pre-existing congenital deformity of spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C19247	Subject ID	Subject identification ID	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
C18678	Family history medical condition other text	The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
C22800	Pregnancy or delivery risk factor other indicator	Indicate whether there are other pregnancy/delivery risk factors	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
C18618	Neonatal problem other text	Specify in text the problems other than those listed that occurred during the neonatal period	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C18619	Delayed motor milestone specify text	Specify in text the motor milestones that are were delayed	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.