CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 57153
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18740 Off study intervention prematurely other text

The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study

Supplemental Study Discontinuation/Completion Traumatic Brain Injury Concussion/Mild TBI
C18740 Off study intervention prematurely other text

The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study

Supplemental Study Discontinuation/Completion Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C18747 Residence other text

The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living

Supplemental Post Discharge Status Traumatic Brain Injury Comprehensive
C18747 Residence other text

The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living

Supplemental Post Discharge Status Traumatic Brain Injury Concussion/Mild TBI
C19247 Subject ID

Subject identification ID

Core International Standards for Neurological Classification of SCI Worksheet Spinal Cord Injury Spinal Cord Injury
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C18618 Neonatal problem other text

Specify in text the problems other than those listed that occurred during the neonatal period

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C18619 Delayed motor milestone specify text

Specify in text the motor milestones that are were delayed

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58712 Lab test method used type

Text field identifying the lab test method used

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58713 Lab test sample type text

Text field for identifying the type of sample collected

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58695 Circumstance Cardiac Magnetic Resonance performed reason

Reason for which the cardiac magnetic resonance imaging was performed

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58696 Cardiac magnetic resonance left ventricular mass index integer

Integer representing the cardiac magnetic resonance imaging left ventricular mass index

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58698 Cardiac magnetic resonance left ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58699 Cardiac magnetic resonance left ventricular stroke volume integer

Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58700 Cardiac magnetic resonance heart rate integer

Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.