CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 57101 - 57125 of 57153
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06246 Medical history condition type

Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06358 Diabetes mellitus type

Type of diabetes mellitus

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18146 Laboratory procedure HDL cholesterol measurement

Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18147 Laboratory procedure LDL cholesterol measurement

Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18168 Laboratory procedure total cholesterol measurement

Measurement of the total amount of cholesterol in the participant's blood

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C18169 Laboratory procedure triglycerides measurement

Measurement of the amount of triglycerides in the participant's blood

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Core Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental Pulmonary Function Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Exploratory Headache Pain Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C19529 Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text

The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental-Highly Recommended Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C08113 Born prematurely indicator

Indicator of whether the participant was informed by a physician or family member that they were born prematurely

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
Displaying 57101 - 57125 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.