CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18745	Perinatal neurologic event other text	The free-text field related to 'Perinatal neurologic event type' specifying other text. Type of perinatal neurologic injury	Supplemental	Significant Medical History	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Comprehensive
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Acute Hospitalized
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Epidemiology
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Concussion/Mild TBI
C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C17404	Injury elapsed time	The elapsed time (in minutes) from the time of injury	Core	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
C18675	Emergency service other text	The free-text field related to 'Emergency service type' specifying other text. Branch of service involved at the accident scene	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Comprehensive
C17404	Injury elapsed time	The elapsed time (in minutes) from the time of injury	Core	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C18675	Emergency service other text	The free-text field related to 'Emergency service type' specifying other text. Branch of service involved at the accident scene	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
C18609	ICD revision number	Number of the International Classification of Diseases (ICD) used to obtain the code	Core	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18663	Abusive head trauma reporter other text	The free-text field related to 'Abusive head trauma reporter type' specifying other text. How the determination of abusive head trauma likelihood was made	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18665	Blast injury device other text	The free-text field related to 'Blast injury device type' specifying other text. Type of device which caused the blast injury	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18724	Injury place occurrence other text	The free-text field related to 'Injury place occurrence type' specifying other text. Classification of the place/setting at which the traumatic brain injury occurred	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18772	Vehicular protective device other text	The free-text field related to 'Vehicular protective device type' specifying other text. Type of protective devices used by the participant/subject	Supplemental	Type, Place, Cause and Mechanism of Injury	False	Traumatic Brain Injury	Comprehensive
C18668	Definitive clinical care post trauma location other text	The free-text field related to 'Definitive clinical care post trauma location type' specifying other text. Indicates type of location where patient received definitive clinical care after the injury	Supplemental	Discharge Status	False	Traumatic Brain Injury	Comprehensive
C18685	Hospital discharge destination other text	The free-text field related to 'Hospital discharge destination type' specifying other text. Type of destination on completion of stabilization/evaluation in hospital	Supplemental	Discharge Status	False	Traumatic Brain Injury	Comprehensive
C18687	ICU discharge destination other text	The free-text field related to 'ICU discharge destination type' specifying other text. Type of destination on completion of stabilization/evaluation in the intensive care unit (ICU) of the hospital	Supplemental	Discharge Status	False	Traumatic Brain Injury	Comprehensive
C18673	Emergency room discharge destination reason other text	The free-text field related to 'Emergency room discharge destination reason' specifying other text. Reason for choice of destination upon discharge from emergency room	Supplemental	ER Destination	False	Traumatic Brain Injury	Comprehensive
C18674	Emergency room discharge destination type other text	The free-text field related to 'Emergency room discharge destination type' specifying other text. Destination on completion of stabilization/evaluation in emergency room	Supplemental	ER Destination	False	Traumatic Brain Injury	Comprehensive
C18673	Emergency room discharge destination reason other text	The free-text field related to 'Emergency room discharge destination reason' specifying other text. Reason for choice of destination upon discharge from emergency room	Supplemental	ER Destination	False	Traumatic Brain Injury	Concussion/Mild TBI
C18674	Emergency room discharge destination type other text	The free-text field related to 'Emergency room discharge destination type' specifying other text. Destination on completion of stabilization/evaluation in emergency room	Supplemental	ER Destination	False	Traumatic Brain Injury	Concussion/Mild TBI
C18673	Emergency room discharge destination reason other text	The free-text field related to 'Emergency room discharge destination reason' specifying other text. Reason for choice of destination upon discharge from emergency room	Supplemental	ER Destination	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.