CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0004-C60377	C60377	Serious adverse event other important medical event indicator	Indicator of whether the serious adverse event is a medically important event not covered by other 'serious' criteria	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60378	C60378	Serious adverse event other important medical event text	The free-text field to describe the medically important event not covered by other 'serious' criteria	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60379	C60379	Study intervention name	Name of study intervention	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60380	C60380	Serious adverse event cause discontinue study indicator	Indicator of whether the serious adverse event caused the participant to be discontinued from the study	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60381	C60381	Serious adverse event investigator assessment reason other text	The free-text field related to 'Serious adverse event investigator assessment reason', specifying other text. Reason in the opinion of the principal investigator that is attributed as the cause of the serious adverse event	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60382	C60382	Principal investigator name	Name of principal investigator	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60383	C60383	Principal investigator address text	The free-text field to specify the principal investigator's address	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60384	C60384	Adverse event report identifier telephone number	Telephone number of an authorized group or person reporting the adverse event	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0004-C60385	C60385	Serious adverse event sponsor assessment indicator	Indicator of whether the adverse event is serious, based on the sponsor's assessment	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0003-C18751	C18751	Sex participant or subject genotype other text	The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F0005-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21118	C21118	Subject mailing address name	Name of the mailing address of subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21119	C21119	Subject home city name	Name of city in which the subject/participant lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21120	C21120	Subject home state province name	The name of the state or province that the subject/participant inhabits	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21121	C21121	Subject zip postal code number	The number of the subject/participant's zip/postal code	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21122	C21122	Subject home phone number	The home phone number of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21123	C21123	Subject other phone number	The other phone number of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21124	C21124	Subject email address name	The name of the email address of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0006-C21108	C21108	Visit present indicator	Indicator for the presence of the subject at the visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21110	C21110	Last visit indicator	Indicator for the visit being the last one	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21111	C21111	Form not completed indicator	Indicator for the incompletion of the form	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0008-C21112	C21112	Visit form name	Name of the form used during the visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21113	C21113	Visit screening indicator	Indicator for screening during visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21114	C21114	Visit post baseline day count	The number of days since baseline visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.