CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 57596
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Screening Log General (For all diseases) General (For all diseases)
C21117 Subject name

Name of subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21118 Subject mailing address name

Name of the mailing address of subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21119 Subject home city name

Name of city in which the subject/participant lives

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21120 Subject home state province name

The name of the state or province that the subject/participant inhabits

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21122 Subject home phone number

The home phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21123 Subject other phone number

The other phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21124 Subject email address name

The name of the email address of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C21108 Visit present indicator

Indicator for the presence of the subject at the visit

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21110 Last visit indicator

Indicator for the visit being the last one

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21111 Form not completed indicator

Indicator for the incompletion of the form

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C21112 Visit form name

Name of the form used during the visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C21113 Visit screening indicator

Indicator for screening during visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C21114 Visit post baseline day count

The number of days since baseline visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C21115 Visit week count

Count of days in a week where a visit was made

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C21116 Visit follow-up indicator

Indicator for a follow-up visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C59686 COVID-19 status reason

Reason related to the status of whether the participant/subject thinks that they have or have had coronavirus disease 2019 (COVID-19)

Supplemental Medical History General (For all diseases) General (For all diseases)
C59687 COVID-19 first date

Date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19)

Supplemental Medical History General (For all diseases) General (For all diseases)
C59688 COVID-19 first date not applicable status

Status denoting that the date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19) is not applicable

Supplemental Medical History General (For all diseases) General (For all diseases)
C59689 COVID-19 vaccine or clinical vaccine trial status

Status related to whether the participant/subject has ever been given a coronavirus disease 2019 (COVID-19) vaccine or has enrolled in COVID-19 vaccine clinical trials

Supplemental Medical History General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.