CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 57130
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60360 IV thrombolytic agent total dose

Dose of IV thrombolytic agent, in mg, given to the participant

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60361 IV thrombolytic agent type

Type of IV thrombolytic agent given to the participant

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60362 IV thrombolytic agent type other text

The free-text field related to 'IV thrombolytic agent type' specifying other text.

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60363 IV thrombolytic agent not started reason

If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60364 IV thrombolytic agent not started other text

The free-text field related to 'IV thrombolytic agent not started reason' specifying other text. If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60365 IV thrombolytic agent not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous thrombolytic agent was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

 Exploratory Thrombolytic/Reperfusion Therapies False Stroke Stroke
C60366 IV thrombolytic agent at another hospital indicator

Indicator of whether IV thrombolytic agent was initiated for the participant at an outside hospital

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
C21117 Subject name

Name of subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21118 Subject mailing address name

Name of the mailing address of subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21119 Subject home city name

Name of city in which the subject/participant lives

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21120 Subject home state province name

The name of the state or province that the subject/participant inhabits

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21122 Subject home phone number

The home phone number of the subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21123 Subject other phone number

The other phone number of the subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21124 Subject email address name

The name of the email address of the subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C21108 Visit present indicator

Indicator for the presence of the subject at the visit

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C21109 Visit assessment complete type

Type of assessment completed during visit

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C21110 Last visit indicator

Indicator for the visit being the last one

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C21111 Form not completed indicator

Indicator for the incompletion of the form

 Supplemental Visit Checklist False General (For all diseases) General (For all diseases)
C21112 Visit form name

Name of the form used during the visit

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
C21113 Visit screening indicator

Indicator for screening during visit

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
C21114 Visit post baseline day count

The number of days since baseline visit

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
C21115 Visit week count

Count of days in a week where a visit was made

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
C21116 Visit follow-up indicator

Indicator for a follow-up visit

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.