CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 57001 - 57025 of 57130
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16174 Menopause indicator

Indicates whether participant is currently menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant is post-menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Comprehensive
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17400 Other pathology ischemic vascular disease text

Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Acute Hospitalized
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Epidemiology
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Concussion/Mild TBI
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory Short Form Health Survey-12 (SF-12) Sport-Related Concussion Acute
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14427 Epilepsy etiology secondary type

Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14485 Epilepsy syndromes distinct confidence level type

Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14429 Global change since prior examination result

Global assessment of the difference between the prior and follow-up examinations

Supplemental Physical Exam Epilepsy Epilepsy
C14430 Tanner stage

Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair

Supplemental Physical Exam Epilepsy Epilepsy
C18931 Global change since prior examination other text

The free-text field related to 'Global change since prior examination result' specifying other text. Global assessment of the difference between the prior and follow-up examinations

Supplemental Physical Exam Epilepsy Epilepsy
C14429 Global change since prior examination result

Global assessment of the difference between the prior and follow-up examinations

Supplemental Neurological Exam Epilepsy Epilepsy
Displaying 57001 - 57025 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.