CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12506 Imaging eye abnormality type

The type of eye abnormalities

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental International SCI Cardiovascular Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C60357 Imaging spinal cord lesion anatomic site type

Type of spinal cord anatomic site where lesions were found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs and Blood Gases Traumatic Brain Injury Comprehensive
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs and Blood Gases Traumatic Brain Injury Acute Hospitalized
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs and Blood Gases Traumatic Brain Injury Epidemiology
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs and Blood Gases Traumatic Brain Injury Concussion/Mild TBI
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs and Blood Gases Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Myasthenia Gravis Myasthenia Gravis (MG)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Epilepsy Epilepsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.