CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 57596
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16137 Symptoms initial category type

The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16138 Symptoms initial category indicator

The presence or absence of symptoms first experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16139 Localization region anatomic site

Regions of possible onset of clinical event experience by participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16140 Localization region indicator

The presence or absence of symptoms experienced by the participant/subject in specific localization regions

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16141 Observation method of localization region type

Observation method used in listed regions

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C17457 MS family medical history indicator

The indicator for family having medical history of Multiple Sclerosis

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19047 Neuromyelitis Optica (NMO) spectrum disorder other text

The free-text field related to 'Neuromyelitis Optica (NMO) spectrum disorder type' specifying other text. Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19048 Acute disseminated encephalomyelitis (ADEM) clinical course other text

The free-text field related to 'Acute disseminated encephalomyelitis (ADEM) clinical course type' specifying other text. The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19049 CNS other demyelinating disorder other text

The free-text field related to 'CNS other demyelinating disorder type' specifying other text. Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19050 Symptoms initial category other text

The free-text field related to 'Symptoms initial category type' specifying other text. The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C15322 Imaging clinical visit date and time

Date and time of clinical visit coinciding with scan

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15330 Imaging clinical visit type

The type of clinical visit coinciding with scan

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15358 Imaging gadolinium administered in window indicator

The indicator for whether gadolinium was administered in the protocol window

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15368 Imaging estimated glomerular filtration rate (eGFR) performed date and time

Date and time (if applicable) estimated glomerular filtration rate (eGFR) performed

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15644 Imaging QA/QC result

Results of image-based QA/QC

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15647 Imaging elapsed time from injection to post-Gd T1-weighted sequence value

Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15651 Imaging estimated glomerular filtration rate (eGFR) result value

Estimated glomerular filtration rate (eGFR) result in mg/dL

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C18998 Imaging clinical visit other text

The free-text field related to 'Imaging clinical visit type' specifying other text. The type of clinical visit coinciding with scan

Supplemental Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15321 Imaging T2W brain lesion volume measurement

Total volume of all focal T2-hyperintense brain lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15329 Imaging T2 lesion total count performed indicator

Whether total counts of the number of focal T2-hyperintense brain lesions was performed

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15338 Imaging T2 lesion total count

Total number of focal T2-hyperintense brain lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15346 Imaging regional T2 lesion count performed indicator

Whether regional T2 lesion counts were performed

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15351 Imaging regional T2 lesion count

Number of regional T2 lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15357 Imaging periventricular lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the ventricular system

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15364 Imaging juxtacortical lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.