CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C16192	Vaccination within one month of demyelinating attack indicator	Whether or not the participant/subject received a vaccination within one month of his/her first demyelinating attack	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17441	Clinical event or milestone cognitive learning disability indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of having a cognitive/learning disability which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17442	Clinical event or milestone day care indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of attending a day care group (with > 5 other children) which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17443	Clinical event or milestone 1 year speech indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17444	Clinical event or milestone 2 year word combination indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17445	Clinical event or milestone 3 year sentence indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C17446	Clinical event or milestone walk indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C16100	Symptoms new or worsening neurologic indicator	Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms	Supplemental-Highly Recommended	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16102	Symptom new or worsening greater than 24 hours indicator	Indicates whether any new or worsening symptoms have occurred lasting more than 24 hours that may signal a new episode or progression of multiple sclerosis	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16103	Fever due to intercurrent illness indicator	Indicates whether the participant/subject has fever due to intercurrent illness	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16104	MS symptoms stable or improving indicator	Indicates whether prior to the onset of this event, the participant's/subject's Multiple Sclerosis (MS) symptoms were stable or improving over the last 30 days	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16105	MS relapse onset within the last 24 hours indicator	Indicates whether onset of relapse was within the last 24 hours	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16106	MS relapse onset within the last 7 days indicator	Indicates whether onset of relapse was within the last 7 days	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16107	Symptom associated with new neurologic findings indicator	Indicates whether the symptom(s) are associated with new neurologic findings	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16109	System deficit type indicator	Indicates whether the symptom(s)/deficit was present in the system	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16110	Symptom associated with new neurologic findings ongoing indicator	Indicates whether the symptom(s) associated with new neurologic findings are ongoing	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16116	Symptom end date	The last or final date (and time, if applicable and known) when a symptom was present	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16117	Protocol defined qualifying relapse indicator	If applicable, is this a protocol defined qualifying relapse according to the definition set in the study protocol	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C17447	Event description text	The free-text field to describe the event	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C16118	MS current diagnosis type	The current Multiple Sclerosis (MS) diagnosis of the participant/subject	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16119	MS onset course type	Type of onset experienced by participant/subject diagnosed with MS	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16121	Neuromyelitis Optica (NMO) spectrum disorder type	Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16122	Neuromyelitis Optica (NMO) spectrum disorder sub-disease type	Details of the Neuromyelitis Optica (NMO) spectrum disorder selected experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.