CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 57153
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report General (For all diseases) General (For all diseases)
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Traumatic Brain Injury Comprehensive
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Traumatic Brain Injury Epidemiology
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Report Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C04802 Death date and time

Date (and time, if known) of participant's death

Basic Death Traumatic Brain Injury Acute Hospitalized
C04802 Death date and time

Date (and time, if known) of participant's death

Basic Death Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Traumatic Brain Injury Concussion/Mild TBI
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental Death Stroke Stroke
C04802 Death date and time

Date (and time, if known) of participant's death

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C22780 Date time clock type

Type of clock used to record date and time

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22780 Date time clock type

Type of clock used to record date and time

Supplemental Demographics General (For all diseases) General (For all diseases)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report General (For all diseases) General (For all diseases)
C22780 Date time clock type

Type of clock used to record date and time

Supplemental Death Report General (For all diseases) General (For all diseases)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Traumatic Brain Injury Comprehensive
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Traumatic Brain Injury Epidemiology
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Myasthenia Gravis Myasthenia Gravis (MG)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C22780 Date time clock type

Type of clock used to record date and time

Supplemental Assessment of Transient Neurologic Deficits Resolved Prior to Presentation Stroke Stroke
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Traumatic Brain Injury Acute Hospitalized
Displaying 1 - 25 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.