CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Comprehensive
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Acute
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Acute
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Persistent/Chronic
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Subacute
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Subacute
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) Sport-Related Concussion Persistent/Chronic
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21393 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite score

Visual memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score

Visual fields assessed using the NIH Stroke Scale (NIHSS)

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score

Visual fields assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score

Visual fields assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C14270 Sophia stroke vessels affected type

Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History General (For all diseases) General (For all diseases)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Comprehensive
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Acute Hospitalized
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Epidemiology
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core International SCI Musculoskeletal Basic Data Set Spinal Cord Injury Spinal Cord Injury
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.