CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 57855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19888 Age biopsy year value

Age (in years) of participant/subject at biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Myasthenia Gravis Myasthenia Gravis (MG)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C16146 Family history relative age at death value

Age at death of the participant/subject's relative, if applicable

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C16146 Family history relative age at death value

Age at death of the participant/subject's relative, if applicable

 Supplemental Family History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C16150 Adopted age value

Age at time of adoption if participant/subject was adopted

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14120 Psychological/neuropsychological previous testing age value

Age at which previous psychological/neuropsychological testing was performed on the participant/subject

 Supplemental Neuropsychological Testing Background Information False Epilepsy Epilepsy
C18201 Family history DMD BMD diagnosis age value

Age at which relative was diagnosed with DMD or BMD

 Supplemental Family History False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

 Supplemental Family History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Comprehensive
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Acute Hospitalized
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Epidemiology
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Concussion/Mild TBI
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Comprehensive
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Persistent/Chronic
C52847 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history drug use disorder onset age value

Age at which the subject/participant's relative being described first experienced a drug use disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Subacute
C52837 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history manic disorder onset age value

Age at which the subject/participant's relative being described first experienced a manic disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Comprehensive
C52837 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history manic disorder onset age value

Age at which the subject/participant's relative being described first experienced a manic disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Acute Hospitalized
C52837 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history manic disorder onset age value

Age at which the subject/participant's relative being described first experienced a manic disorder, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Epidemiology
Displaying 126 - 150 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.