CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60127 Dual X-ray absorptiometry ultradistal radius bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the ultradistal radius

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60103 Dual X-ray absorptiometry whole body less head bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the whole body not including the head

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C55979 California Verbal Learning Test - Second Edition (CVLT-II) - Across trial consistency score

Across trials consistency score, as part of the California Verbal Learning Test (CVLT-II)

Supplemental-Highly Recommended California Verbal Learning Test - Second Edition (CVLT-II) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58389 Medication actual use schedule frequency

Actual frequency of use of medication

Supplemental-Highly Recommended Medication and Other Treatments Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C15943 Headache average days per month count

Actual number of headache days per month the participant/subject had in the past 3 months

Supplemental Migraine Diagnosis Questionnaire Headache Headache
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Comprehensive
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Epidemiology
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Acute Hospitalized
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Concussion/Mild TBI
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Sport-Related Concussion Comprehensive
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Sport-Related Concussion Acute
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Sport-Related Concussion Persistent/Chronic
C02448 Ischemia infarction hypoxic-ischemic injury acute subacute finding type

Acute or subacute ischemia/infarction/hypoxic-ischemic injury present on scan

Supplemental Imaging Sport-Related Concussion Subacute
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Comprehensive
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Epidemiology
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Vessel Imaging Angiography Stroke Stroke
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Acute Hospitalized
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Concussion/Mild TBI
C02487 Vascular dissection findings type

Additional associated findings about the vascular dissection

Supplemental Imaging Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17785 Functional MRI data processing software Additional detail text

Additional details regarding the fMRI data processing software used

Supplemental Functional Magnetic Resonance Imaging (fMRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17982 Thymectomy procedure comment text

Additional text commenting the thymectomy procedure

Supplemental Thymectomy - MG Myasthenia Gravis Myasthenia Gravis (MG)
C58463 Medication adjusted frequency

Adjusted frequency of medication taken per administration prior to adjustments

Supplemental Biomarker-Related Sample and Collection Questions Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.