CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60334	C60334	Mitochondrial disease pancreas imaging study indicator	Indicator of whether the participant had an imaging study of their pancreas	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2573-C53462	C53462	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Demoralization scale score	A 24-item scale representing a pervasive and affect-laden dimension of unhappiness and life dissatisfaction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Comprehensive
F2573-C53462	C53462	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Demoralization scale score	A 24-item scale representing a pervasive and affect-laden dimension of unhappiness and life dissatisfaction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Persistent/Chronic
F2573-C53462	C53462	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Demoralization scale score	A 24-item scale representing a pervasive and affect-laden dimension of unhappiness and life dissatisfaction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Subacute
F2573-C53351	C53351	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Thought Dysfunction scale score	A 26-item scale designed to assess a broad range of difficulties associated with thought dysfunction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Comprehensive
F2573-C53351	C53351	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Thought Dysfunction scale score	A 26-item scale designed to assess a broad range of difficulties associated with thought dysfunction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Persistent/Chronic
F2573-C53351	C53351	Minnesota Multiphasic Personality Inventory - 2 - Restructured Form (MMPI-2-RF) -Thought Dysfunction scale score	A 26-item scale designed to assess a broad range of difficulties associated with thought dysfunction, as part of Minnesota Multiphasic Personality Inventory -2-Restructured Form (MMPI-2-RF)	Exploratory	Minnesota Multiphasic Personality Inventory-2-Restructured Form (MMPI-2-RF)	True	Sport-Related Concussion	Subacute
F1111-C14045	C14045	Magnetoencephalography/ electroencephalography source analysis dipole type	A closed circulation of electric current that can be present in different metrics during an magnetoencephalography/electroencephalography (MEG/EEG)	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1109-C18520	C18520	Language memory paradigms description text	A description of the language or memory paradigm that was used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F2490-C55977	C55977	Overall diet health scale	A general scale of how healthy the participant/subject's diet is	Supplemental	Behavioral History	False	Headache	Headache
F1515-C18379	C18379	Recumbent length measurement	A measurement from the top of the participant's head to his or her heels while the participant is lying recumbent	Supplemental	Vital Signs	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1165-C14541	C14541	Systemic vascular resistance measurement	A measurement of the arteriolar constriction throughout the body	Supplemental	Vital Signs	False	Stroke	Stroke
F2349-C14541	C14541	Systemic vascular resistance measurement	A measurement of the arteriolar constriction throughout the body	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1165-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental	Vital Signs	False	Stroke	Stroke
F2640-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental	Vital Signs	False	Headache	Headache
F2759-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F2640-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Headache	Headache
F2759-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental-Highly Recommended	Physical Examination	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1165-C14537	C14537	Central venous pressure (CVP) measurement	A measurement of the pressure of blood in the central venous system, abbreviated as CVP	Supplemental	Vital Signs	False	Stroke	Stroke
F1165-C14464	C14464	Waist-hip ratio value	A measurement of the ratio of the body circumference at the level of the hips and the level of the waist	Supplemental	Vital Signs	False	Stroke	Stroke
F0004-C20407	C20407	Adverse event reporting identifier name	A name of an authorized group or person reporting the adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1150-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Stroke	Stroke
F2333-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Exploratory	Demographics	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2639-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.