CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 57723
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10716 Canine assistance use indicator

Indicator whether the participant/subject uses canine assistance for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10717 Canine assistance use age started value

Age of the participant/subject when he/she began using canine assistance

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10718 Wheelchair use indicator

Indicator whether the participant/subject uses a wheelchair

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10721 Walking other assistive device use age started value

Age of the participant/subject when he/she began using the other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C17511 Walking difficulty age need intermittent support indicator

Indicator used when participant/subject age when needing intermittent support for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C17512 Walking difficulty age need permanent support indicator

Indicator related to age of participant/subject needing permanent support for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C17517 Wheelchair primary mobility means age indicator

Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C14834 Activities specific Balance Confidence Scale (ABC-Scale) - walk inside home scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking inside the home

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14835 Activities specific Balance Confidence Scale (ABC-Scale) - walk stairs scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down stairs

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14836 Activities specific Balance Confidence Scale (ABC-Scale) - bend to floor scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when bending over and pick up an object from the floor

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14837 Activities specific Balance Confidence Scale (ABC-Scale) - reach scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when reaching for a small object off a shelf at eye level

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14838 Activities specific Balance Confidence Scale (ABC-Scale) - reach above head scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on tip toes and reach for something above the head

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14839 Activities specific Balance Confidence Scale (ABC-Scale) - chair stand scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on a chair to reach for something

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14840 Activities specific Balance Confidence Scale (ABC-Scale) - sweep scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when sweeping the floor

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14841 Activities specific Balance Confidence Scale (ABC-Scale) - walk to car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside of the house to a car parked in the driveway

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14842 Activities specific Balance Confidence Scale (ABC-Scale) - enter exit car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when getting into or out of a car

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14843 Activities specific Balance Confidence Scale (ABC-Scale) - across parking lot scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking across a parking lot to the mall

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14844 Activities specific Balance Confidence Scale (ABC-Scale) - ramp scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down a ramp

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14845 Activities specific Balance Confidence Scale (ABC-Scale) - crowd scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking in a crowded mall where people rapidly walk past them

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14846 Activities specific Balance Confidence Scale (ABC-Scale) - body collision scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking through the mall where other people bumped into them

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14847 Activities specific Balance Confidence Scale (ABC-Scale) - escalator use scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when stepping onto or off of an escalator while holding onto a railing

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
Displaying 51 - 75 of 57723

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.