CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1050-C12278	C12278	Specimen histochemical stain diagnostic abnormality type	Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1102-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58583	C58583	Seizure epilepsy focal classification type	The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58599	C58599	Seizure epilepsy generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14426	C14426	Epilepsy etiology primary type	Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C14427	C14427	Epilepsy etiology secondary type	Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58582	C58582	Genetic presumed genetic epilepsy etiology type	The categorization for genetic or presumed genetic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58605	C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1104-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14470	C14470	Epilepsy syndrome likelihood present type	Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14471	C14471	Epilepsy syndrome neonatal onset type	Common epilepsy syndromes with onset in the neonatal period (	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14472	C14472	Epilepsy syndrome age of onset type	Age period during which the epilepsy syndrome first appeared	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14473	C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14475	C14475	Epilepsy syndrome childhood onset type	Common epilepsy syndromes for children, 2-12 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14477	C14477	Epilepsy syndrome adolescence adult onset type	Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14479	C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14481	C14481	Epilepsy syndrome distinctive constellation type	Syndromes with distinctive constellations, diagnostically meaningful forms of epilepsy and may have implications for clinical treatment, particularly surgery	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14485	C14485	Epilepsy syndromes distinct confidence level type	Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.