CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 56917
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12782 Gene additional variants unknown significance indicator

Whether there are additional variants in other genes of unknown significance

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12784 Variant mutational analysis performed family member indicator

Whether the mutational analysis was performed on a family member

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12808 Gene sequenced with no variant or mutation indicator

Whether there are additional genes sequenced with no variants or mutations detected

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12944 Variant mutational analysis performed indicator

Whether the variant or mutational analysis was performed on the participant/subject

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Fat Aspirate Tissue Specimens Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12277 Biospecimen fragment collect count

Count of fragments collected in the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12278 Specimen histochemical stain diagnostic abnormality type

Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C58583 Seizure epilepsy focal classification type

The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C58599 Seizure epilepsy generalized classification type

The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C58604 Seizure unclassified classification status

The element related to the degree to which unclassified seizures are present

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C14425 Epilepsy etiology specific attribution confidence type

The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14427 Epilepsy etiology secondary type

Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58582 Genetic presumed genetic epilepsy etiology type

The categorization for genetic or presumed genetic etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
Displaying 101 - 125 of 56917

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.