CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

84099 results.

Operations

Selected 24 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C10409	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep well night past month scale	Pre-specified scales for overall sleep at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10410	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep unexpected past month frequency	Pre-specified frequencies for falling asleep unexpectedly during the day or in the evening in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10411	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep sitting past month frequency	Pre-specified frequencies for falling asleep while sitting peacefully in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10412	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep watch read past month frequency	Pre-specified frequencies for falling asleep peacefully while watching TV or reading in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10413	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency	Pre-specified frequencies for falling asleep while talking to someone in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10414	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency	Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C10415	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency	Pre-specified frequencies for falling asleep during the day as a problem in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C59184	Migration percentage left value	The value of the left migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
C59185	Migration percentage right value	The value of the right migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59189	Assistive device type other text	The free-text field related to "Assistive device type" specifying other assistive device types currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59194	Gait velocity barefoot condition measurement	Value of the speed measured in meters per second in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59195	Gait cadence barefoot condition measurement	Count of the steps per minute in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59196	Gait stride length barefoot condition left measurement	Value of the distance measured in meters from heel contact to heel contact on the left foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59197	Gait stride length barefoot condition right measurement	Value of the distance in meters from heel contact to heel contact on the right foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59203	Gait velocity orthotic condition measurement	Value of the speed measured in meters per second in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59204	Gait cadence orthotic condition measurement	Count of the steps per minute in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59205	Gait stride length orthotic condition left measurement	Value of the distance measured in meters from heel contact to heel contact on the left foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59206	Gait stride length orthotic condition right measurement	Value of the distance measured in meters from heel contact to heel contact on the right foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59245	Gait step length barefoot condition left measurement	Value of the distance measured in meters between the point of initial contact of the left foot and the point of initial contact of the right foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59246	Gait step length barefoot condition right measurement	Value of the distance measured in meters between the point of initial contact of the right foot and the point of initial contact of the left foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59247	Gait step length orthotic condition left measurement	Value of the distance measured in meters between the point of initial contact of the left foot and the point of initial contact of the right foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
C59248	Gait step length orthotic condition right measurement	Value of the distance measured in meters between the point of initial contact of the right foot and the point of initial contact of the left foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy

84099 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.