CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 651 - 675 of 57153
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00032 Race USA paternal category

Race(s) the participant's father most closely identifies with

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00033 Race USA maternal category

Race(s) the participant's mother most closely identifies with

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00035 Gender type

Self-reported gender of the participant/subject

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12611 Birth location state name

Name of the state/province/similar political division in which participant was born

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C17973 Ethnic race relation indicator

Indicator of the participant/subject's relation to the person about whom the following questions on ethnic and racial identity apply

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18863 Birth location state other text

The free-text field related to 'Birth location state name', specifying other text. Name of the state/province/similar political division in which participant was born

 Core Demographics - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

 Core Family History - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Core Family History - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12642 Symptom first experienced distribution category

System or region of the body that exhibited the first symptoms of the disease/disorder

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12643 Myasthenia Gravis Foundation of America (MGFA) classification type

The Myasthenia Gravis Foundation of America (MGFA) classification of the maximum severity of Myasthenia Gravis symptoms

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18802 Symptom first experienced other text

The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C18865 Symptom first experienced distribution other text

The free-text field related to 'Symptom first experienced distribution category' specifying other text. System or region of the body that exhibited the first symptoms of the disease/disorder

 Core Medical History of MG - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12652 Myasthenia Gravis Foundation of America (MGFA) - post-intervention status

The Myasthenia Gravis Foundation of America (MGFA) post intervention status

 Core MG Status - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12811 Thymectomy date and time

Date and time (if applicable and known) thymectomy procedure was performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12812 Thymectomy technique type

Type of technique used for the thymectomy procedure

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12813 Thymectomy transcervical type

The type of transcervical thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12814 Thymectomy videoscopic type

The type of videoscopic thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12815 Thymectomy transsternal type

The type of transsternal thymectomy performed

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12816 Thymus non-thymoma histology grade

Results from the non-thymoma thymus histology

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C12817 Thymoma histology grade

The World Health Organization (WHO) grade for thymoma histology

 Core Thymectomy - MG False Myasthenia Gravis Myasthenia Gravis (MG)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

 Core Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 651 - 675 of 57153

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.