CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 576 - 600 of 57130
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11964 Tardieu Scale relative velocity rate

The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject

Core Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11965 Tardieu Scale movement resistance score

The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Core Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11966 Tardieu Scale muscle reaction angle measurement

The degree of angle for limb position at which muscle reaction or spasticity occurs for a given velocity administered during the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject

Core Tardieu Scale Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 576 - 600 of 57130

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.