CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1535-C00025	C00025	Language primary text	Text for the language the participant/subject speaks most often	Basic	Demographics	False	Traumatic Brain Injury	Concussion/Mild TBI
F1535-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Basic	Demographics	False	Traumatic Brain Injury	Concussion/Mild TBI
F1538-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Acute Hospitalized
F1538-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Acute Hospitalized
F1538-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Acute Hospitalized
F1538-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Concussion/Mild TBI
F1538-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Concussion/Mild TBI
F1538-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Concussion/Mild TBI
F1539-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1539-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1539-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1539-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F1540-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Epidemiology
F1540-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Epidemiology
F1540-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Epidemiology
F1540-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Epidemiology
F1540-C00222	C00222	Job classification category	Category that classifies work performed by participant/subject	Basic	Socioeconomic Status	False	Traumatic Brain Injury	Epidemiology
F1541-C00324	C00324	Concussion prior number	Number of prior concussions	Basic	Significant Medical History	False	Traumatic Brain Injury	Concussion/Mild TBI
F1543-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Acute Hospitalized
F1543-C05401	C05401	Injury date reliability type	The type of reliability of the reported injury date	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Acute Hospitalized
F1543-C05408	C05408	Hospital admission date and time	Date (and time, if applicable and known) the participant/subject was admitted to the hospital	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Acute Hospitalized
F1544-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Epidemiology
F1544-C05401	C05401	Injury date reliability type	The type of reliability of the reported injury date	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Epidemiology
F1544-C05411	C05411	Injury immediate medical service receive indicator	Indicator of whether initial medical services were received directly after injury	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Epidemiology
F1545-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Basic	Injury Presentation - Early/Late	False	Traumatic Brain Injury	Concussion/Mild TBI

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.