CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 351 - 375 of 56917
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Core Demographics Traumatic Brain Injury Comprehensive
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Traumatic Brain Injury Comprehensive
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Core Demographics Traumatic Brain Injury Comprehensive
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Core Demographics Traumatic Brain Injury Comprehensive
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C00202 Education school participation status

Status of participant/subject's current attendance at school

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C18614 Education primary caregiver year count

Number of years of education of the primary caregiver (age 5 and beyond)

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C18658 Employment expanded status

Status of participant/subject's current employment (expanded list)

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C18676 Employment expanded other text

The free-text field related to 'Employment expanded status' specifying other text. Status of participant/subject's current employment

Core Socioeconomic Status Traumatic Brain Injury Comprehensive
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Significant Medical History Traumatic Brain Injury Comprehensive
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Comprehensive
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Significant Medical History Traumatic Brain Injury Acute Hospitalized
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Acute Hospitalized
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Significant Medical History Traumatic Brain Injury Epidemiology
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Epidemiology
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Significant Medical History Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Significant Medical History Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Comprehensive
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Comprehensive
C05400 Injury date time

Date (and time, if applicable and known) of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17404 Injury elapsed time

The elapsed time (in minutes) from the time of injury

Core Injury Presentation - Early/Late Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C05421 Injury ICD external cause code

Code to classify the external cause of the injury

Core Type, Place, Cause and Mechanism of Injury Traumatic Brain Injury Comprehensive
C18609 ICD revision number

Number of the International Classification of Diseases (ICD) used to obtain the code

Core Type, Place, Cause and Mechanism of Injury Traumatic Brain Injury Comprehensive
C58469 TBI cause type

Broad classification of the type of traumatic brain injury experienced by participant/subject

Core Type, Place, Cause and Mechanism of Injury Traumatic Brain Injury Comprehensive
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Core Baseline Risk Assessment Traumatic Brain Injury Comprehensive
Displaying 351 - 375 of 56917

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.