CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 876 - 900 of 57153

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0009-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1126-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F0004-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F2939-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2752-C57313	C57313	Adverse reaction drug name	The name of the drug to which the participant/subject has an adverse reaction	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57316	C57316	Adverse reaction drug receive year text	Free-text field to indicate the year(s) the participant/subject has received a drug which causes an adverse reaction	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57315	C57315	Adverse reaction drug route text	Free-text field to describe the route used for a drug which causes an adverse reaction for the participant/subject	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2752-C57282	C57282	Adverse reaction drug type text	Free-text field to describe the type of adverse reaction the participant/subject has from a drug	Exploratory	Medical History - Immune Module	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2691-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2942-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2742-C57492	C57492	Age activity range	Range of ages at which the individual participated in the indicated activity	Exploratory	Physical Functioning and Activities of Daily Living	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1908-C19888	C19888	Age biopsy year value	Age (in years) of participant/subject at biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1073-C12618	C12618	Age first suspected something different range	Age range of participant/subject when it was first suspected that something might be "different"	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1049-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myasthenia Gravis	Myasthenia Gravis (MG)
F1908-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1985-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1987-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1988-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2137-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Duchenne Muscular Dystrophy/Becker Muscular Dystrophy	Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F0300-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0310-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Baseline Risk Assessment	False	Traumatic Brain Injury	Comprehensive
F1057-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.