CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16123 Acute myelitis segment anatomic site

The anatomic site(s) of segments in the vertebral column involved in acute myelitis

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19461 Acute spinal cord injury feature type

Type of acute spinal cord injury feature

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19463 Acute spinal cord injury features integer range value

Value on the integer range for acute spinal cord injury feature

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C52415 ADD ADHD indicator

The indicator relating to whether or not the participant or the participant's family have ADD or ADHD

Supplemental Participant and Family Psychological History Sport-Related Concussion Comprehensive
C52415 ADD ADHD indicator

The indicator relating to whether or not the participant or the participant's family have ADD or ADHD

Supplemental Participant and Family Psychological History Sport-Related Concussion Acute
C52415 ADD ADHD indicator

The indicator relating to whether or not the participant or the participant's family have ADD or ADHD

Supplemental Participant and Family Psychological History Sport-Related Concussion Persistent/Chronic
C52415 ADD ADHD indicator

The indicator relating to whether or not the participant or the participant's family have ADD or ADHD

Supplemental Participant and Family Psychological History Sport-Related Concussion Subacute
C52416 ADD ADHD medication perscription indicator

The indicator relating to whether or not the participant or the participant's family has been perscribed ADD or ADHD medication

Supplemental Participant and Family Psychological History Sport-Related Concussion Comprehensive
C52416 ADD ADHD medication perscription indicator

The indicator relating to whether or not the participant or the participant's family has been perscribed ADD or ADHD medication

Supplemental Participant and Family Psychological History Sport-Related Concussion Acute
C52416 ADD ADHD medication perscription indicator

The indicator relating to whether or not the participant or the participant's family has been perscribed ADD or ADHD medication

Supplemental Participant and Family Psychological History Sport-Related Concussion Persistent/Chronic
C52416 ADD ADHD medication perscription indicator

The indicator relating to whether or not the participant or the participant's family has been perscribed ADD or ADHD medication

Supplemental Participant and Family Psychological History Sport-Related Concussion Subacute
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Child Behaviors Checklist (CBCL) Teacher Report Form for Ages 6-18 Traumatic Brain Injury Comprehensive
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Child Behaviors Checklist (CBCL) Teacher Report Form for Ages 6-18 Traumatic Brain Injury Acute Hospitalized
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Child Behaviors Checklist (CBCL) Teacher Report Form for Ages 6-18 Traumatic Brain Injury Epidemiology
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Child Behaviors Checklist (CBCL) Teacher Report Form for Ages 6-18 Traumatic Brain Injury Concussion/Mild TBI
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Child Behaviors Checklist (CBCL) Teacher Report Form for Ages 6-18 Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Exploratory Child Behavior Checklist (CBCL) Teacher Report Form for Ages 6-18 Sport-Related Concussion Comprehensive
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Exploratory Child Behavior Checklist (CBCL) Teacher Report Form for Ages 6-18 Sport-Related Concussion Acute
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Exploratory Child Behavior Checklist (CBCL) Teacher Report Form for Ages 6-18 Sport-Related Concussion Persistent/Chronic
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Exploratory Child Behavior Checklist (CBCL) Teacher Report Form for Ages 6-18 Sport-Related Concussion Subacute
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Medical and Family History Headache Headache
C58883 Adjunctive treatment drool surgical procedure injection specify text

The free-text field related to 'Adjunctive treatment type' specifying the type of surgical procedure or injections for drooling text. Describe the type(s) of adjunctive treatments

Supplemental Rehabilitation Therapies Stroke Stroke
C14288 Adjunctive treatment indicator

Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence

Supplemental Rehabilitation Therapies Stroke Stroke
C14288 Adjunctive treatment indicator

Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.