CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2485-C52353	C52353	12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score	Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52353	C52353	12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score	Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52353	C52353	12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score	Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52355	C52355	12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score	Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52355	C52355	12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score	Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52355	C52355	12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score	Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52349	C52349	12-item Short Form Health Survey Version 2 (SF-12v2) - Interfering social activties physical emotional scale	Scale of interfered normal social activities due to physical and emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52349	C52349	12-item Short Form Health Survey Version 2 (SF-12v2) - Interfering social activties physical emotional scale	Scale of interfered normal social activities due to physical and emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52349	C52349	12-item Short Form Health Survey Version 2 (SF-12v2) - Interfering social activties physical emotional scale	Scale of interfered normal social activities due to physical and emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52340	C52340	12-item Short Form Health Survey Version 2 (SF-12v2) - Less accomplished physical health scale	Scale for surveyee-reported less accomplishment as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52340	C52340	12-item Short Form Health Survey Version 2 (SF-12v2) - Less accomplished physical health scale	Scale for surveyee-reported less accomplishment as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52340	C52340	12-item Short Form Health Survey Version 2 (SF-12v2) - Less accomplished physical health scale	Scale for surveyee-reported less accomplishment as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52354	C52354	12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score	Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52354	C52354	12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score	Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52354	C52354	12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score	Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52350	C52350	12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score	Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52350	C52350	12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score	Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52350	C52350	12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score	Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52344	C52344	12-item Short Form Health Survey Version 2 (SF-12v2) - Times calm peaceful scale	Scale of times feeling calm and peaceful during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52344	C52344	12-item Short Form Health Survey Version 2 (SF-12v2) - Times calm peaceful scale	Scale of times feeling calm and peaceful during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52344	C52344	12-item Short Form Health Survey Version 2 (SF-12v2) - Times calm peaceful scale	Scale of times feeling calm and peaceful during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52346	C52346	12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale	Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2577-C52346	C52346	12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale	Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	Short Form Health Survey-12 (SF-12)	True	Sport-Related Concussion	Acute
F2485-C52346	C52346	12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale	Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52345	C52345	12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale	Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.