CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 57855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Medical History General (For all diseases) General (For all diseases)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Stroke Types and Subtypes Stroke Stroke
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

Supplemental Medical History General (For all diseases) General (For all diseases)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Myasthenia Gravis Myasthenia Gravis (MG)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Medical History General (For all diseases) General (For all diseases)
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental FITBIR Demographics Form Traumatic Brain Injury Comprehensive
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Demographics Traumatic Brain Injury Concussion/Mild TBI
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Exploratory Demographics Spinal Cord Injury Spinal Cord Injury
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Demographics Traumatic Brain Injury Comprehensive
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Socioeconomic Status Sport-Related Concussion Comprehensive
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

Supplemental Demographics - MG Myasthenia Gravis Myasthenia Gravis (MG)
Displaying 1 - 25 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.