CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2435-C54948	C54948	Ventilation mechanical invasive total duration	Total duration in days of invasive mechanical ventilation administered to the subject/particpant	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54949	C54949	Ventilation mechanical noninvasive total duration	Total duration in days of noninvasive mechanical ventilation administered to the subject/particpant	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54950	C54950	Intracranial hypertension cerebral edema osmotherapy indicator	Indicator of whether osmotherapy was administered for intracranial hypertension or cerebral edema	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54951	C54951	Blood glucose upper threshold value	Value of blood glucose upper threshold prompting treatment	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54952	C54952	Intracranial hypertension cerebral edema osmotherapy specify text	The free-text field related to 'Intracranial hypertension cerebral edema osmotherapy indicator' for specifying the osmotherapy administered	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54915	C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54916	C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54917	C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54918	C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54919	C54919	Unruptured intracranial aneurysm management noncompliance text	The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance	Exploratory	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54920	C54920	Unruptured intracranial aneurysm rupture risk PHASES score	Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)	Supplemental	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54921	C54921	Unruptured intracranial aneurysm treatment repair score	Score in favor of repair on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2436-C54922	C54922	Unruptured intracranial aneurysm treatment management score	Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58608	C58608	Chemical mechanical intra-arterial balloon angioplasty indicator	Indicates if intra-arterial chemical or mechanical balloon angioplasty was performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58609	C58609	Chemical mechanical therapy subarachnoid hemorrhage day count	Number of days elapsed since the subarachnoid hemorrhage event that chemical or mechanical therapy is being performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58610	C58610	Chemical therapy intra-arterial indicator	Indicates if intra-arterial chemical therapy was performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58611	C58611	Chemical therapy intra-arterial vasodilator type	Type of vasodilator utilized for intra-arterial chemical therapy	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58612	C58612	Chemical therapy intra-arterial adverse clinical exam change type	The element related to adverse clinical exam changes directly related to the intra-arterial therapy	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58613	C58613	Chemical therapy intra-arterial procedural adverse event type	Type of procedural adverse events related to intra-arterial chemical therapy that occurred	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58614	C58614	Mechanical balloon angioplasty intra-arterial indicator	Indicates if intra-arterial mechanical balloon angioplasty was performed	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58615	C58615	Mechanical balloon angioplasty adverse clinical exam change indicator	Indicates if adverse clinical exam changes directly related to the mechanical treatment were seen	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58616	C58616	Mechanical balloon angioplasty procedural adverse event type	Type of procedural adverse events related to mechanical angioplasty that occurred	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58627	C58627	Chemical therapy intra-arterial vasodilator other text	Free-text field related to other type of vasodilator utilized for intra-arterial chemical therapy	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58628	C58628	Chemical therapy intra-arterial procedural adverse event other text	Free-text field related to other type of procedural adverse events related to intra-arterial chemical therapy	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2437-C58629	C58629	Mechanical balloon angioplasty procedural adverse event other text	Free-text field related to type of procedural adverse events related to mechanical angioplasty that occurred	Supplemental	Rescue Therapy	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.