CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 12601 - 12625 of 12871

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2024-C55254	C55254	Quality of Life - Upper extremity water house plant scale	The scale which represents the extent the participant was able to water a house plant, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55255	C55255	Quality of Life - Upper extremity lift heavy painting or picture hang above eye-level scale	The scale which represents the extent the participant was able to lift a heavy painting or picture to hang above eye- level, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55255	C55255	Quality of Life - Upper extremity lift heavy painting or picture hang above eye-level scale	The scale which represents the extent the participant was able to lift a heavy painting or picture to hang above eye- level, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55255	C55255	Quality of Life - Upper extremity lift heavy painting or picture hang above eye-level scale	The scale which represents the extent the participant was able to lift a heavy painting or picture to hang above eye- level, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55255	C55255	Quality of Life - Upper extremity lift heavy painting or picture hang above eye-level scale	The scale which represents the extent the participant was able to lift a heavy painting or picture to hang above eye- level, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55255	C55255	Quality of Life - Upper extremity lift heavy painting or picture hang above eye-level scale	The scale which represents the extent the participant was able to lift a heavy painting or picture to hang above eye- level, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55256	C55256	Quality of Life - Upper extremity pass 20 pound ham or turkey to other people at table scale	The scale which represents the extent the participant was able to pass a twenty pound ham or turkey to other people at the table, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55256	C55256	Quality of Life - Upper extremity pass 20 pound ham or turkey to other people at table scale	The scale which represents the extent the participant was able to pass a twenty pound ham or turkey to other people at the table, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55256	C55256	Quality of Life - Upper extremity pass 20 pound ham or turkey to other people at table scale	The scale which represents the extent the participant was able to pass a twenty pound ham or turkey to other people at the table, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55256	C55256	Quality of Life - Upper extremity pass 20 pound ham or turkey to other people at table scale	The scale which represents the extent the participant was able to pass a twenty pound ham or turkey to other people at the table, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55256	C55256	Quality of Life - Upper extremity pass 20 pound ham or turkey to other people at table scale	The scale which represents the extent the participant was able to pass a twenty pound ham or turkey to other people at the table, as a part of Patient Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55257	C55257	Quality of Life - Upper extremity continuously swing a baseball bat or tennis racket back and forth for5 minutes scale	The scale which represents the extent the participant was able to continuously swing a baseball bat or tennis racket back and forth for five minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55257	C55257	Quality of Life - Upper extremity continuously swing a baseball bat or tennis racket back and forth for5 minutes scale	The scale which represents the extent the participant was able to continuously swing a baseball bat or tennis racket back and forth for five minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55257	C55257	Quality of Life - Upper extremity continuously swing a baseball bat or tennis racket back and forth for5 minutes scale	The scale which represents the extent the participant was able to continuously swing a baseball bat or tennis racket back and forth for five minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55257	C55257	Quality of Life - Upper extremity continuously swing a baseball bat or tennis racket back and forth for5 minutes scale	The scale which represents the extent the participant was able to continuously swing a baseball bat or tennis racket back and forth for five minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55257	C55257	Quality of Life - Upper extremity continuously swing a baseball bat or tennis racket back and forth for5 minutes scale	The scale which represents the extent the participant was able to continuously swing a baseball bat or tennis racket back and forth for five minutes, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55258	C55258	Quality of Life - Upper extremity health limit opening a previously opened jar scale	The scale which represents the extent the participants health limited them in opening a previously opened jar, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55258	C55258	Quality of Life - Upper extremity health limit opening a previously opened jar scale	The scale which represents the extent the participants health limited them in opening a previously opened jar, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55258	C55258	Quality of Life - Upper extremity health limit opening a previously opened jar scale	The scale which represents the extent the participants health limited them in opening a previously opened jar, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55258	C55258	Quality of Life - Upper extremity health limit opening a previously opened jar scale	The scale which represents the extent the participants health limited them in opening a previously opened jar, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55258	C55258	Quality of Life - Upper extremity health limit opening a previously opened jar scale	The scale which represents the extent the participants health limited them in opening a previously opened jar, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2311-C50000	C50000	Screen for Child Anxiety Related Disorders (SCARED) ? Frightened hard to breathe scale	The scale indicating difficulty with breathing when frightened, as part of the Screen for Child Anxiety Related Disorders (SCARED) scale	Supplemental	Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version	True	Traumatic Brain Injury	Acute Hospitalized
F2311-C50000	C50000	Screen for Child Anxiety Related Disorders (SCARED) ? Frightened hard to breathe scale	The scale indicating difficulty with breathing when frightened, as part of the Screen for Child Anxiety Related Disorders (SCARED) scale	Supplemental	Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2311-C50000	C50000	Screen for Child Anxiety Related Disorders (SCARED) ? Frightened hard to breathe scale	The scale indicating difficulty with breathing when frightened, as part of the Screen for Child Anxiety Related Disorders (SCARED) scale	Supplemental	Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version	True	Traumatic Brain Injury	Epidemiology
F2311-C50000	C50000	Screen for Child Anxiety Related Disorders (SCARED) ? Frightened hard to breathe scale	The scale indicating difficulty with breathing when frightened, as part of the Screen for Child Anxiety Related Disorders (SCARED) scale	Supplemental	Screen for Child Anxiety Related Emotional Disorders (SCARED) Parent version	True	Traumatic Brain Injury	Comprehensive

Displaying 12601 - 12625 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.