CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 12526 - 12550 of 12871

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2024-C55106	C55106	Quality of Life - Upper extremity cut paper with scissors scale	The scale which represents the extent to which the participant was able to cut a piece of paper with scissors, as a part of Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55108	C55108	Quality of Life - Upper extremity squeeze new tube of toothpaste scale	The scale which represents the extent to which the participant was able to squeeze a new tube of toothpaste, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) upper extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55108	C55108	Quality of Life - Upper extremity squeeze new tube of toothpaste scale	The scale which represents the extent to which the participant was able to squeeze a new tube of toothpaste, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) upper extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55108	C55108	Quality of Life - Upper extremity squeeze new tube of toothpaste scale	The scale which represents the extent to which the participant was able to squeeze a new tube of toothpaste, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) upper extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55108	C55108	Quality of Life - Upper extremity squeeze new tube of toothpaste scale	The scale which represents the extent to which the participant was able to squeeze a new tube of toothpaste, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) upper extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55108	C55108	Quality of Life - Upper extremity squeeze new tube of toothpaste scale	The scale which represents the extent to which the participant was able to squeeze a new tube of toothpaste, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) upper extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55109	C55109	Quality of Life - Upper extremity pour liquid from bottle into glass scale	The scale which represents the extent to which the participant was able to pour liquid from a bottle into a glass, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55109	C55109	Quality of Life - Upper extremity pour liquid from bottle into glass scale	The scale which represents the extent to which the participant was able to pour liquid from a bottle into a glass, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55109	C55109	Quality of Life - Upper extremity pour liquid from bottle into glass scale	The scale which represents the extent to which the participant was able to pour liquid from a bottle into a glass, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55109	C55109	Quality of Life - Upper extremity pour liquid from bottle into glass scale	The scale which represents the extent to which the participant was able to pour liquid from a bottle into a glass, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55109	C55109	Quality of Life - Upper extremity pour liquid from bottle into glass scale	The scale which represents the extent to which the participant was able to pour liquid from a bottle into a glass, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55110	C55110	Quality of Life - Upper extremity push open door after turning knob scale	The scale which represents the extent the participant was able to push open a door after turning the knob, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55110	C55110	Quality of Life - Upper extremity push open door after turning knob scale	The scale which represents the extent the participant was able to push open a door after turning the knob, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55110	C55110	Quality of Life - Upper extremity push open door after turning knob scale	The scale which represents the extent the participant was able to push open a door after turning the knob, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55110	C55110	Quality of Life - Upper extremity push open door after turning knob scale	The scale which represents the extent the participant was able to push open a door after turning the knob, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55110	C55110	Quality of Life - Upper extremity push open door after turning knob scale	The scale which represents the extent the participant was able to push open a door after turning the knob, as a part of Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55111	C55111	Quality of Life - Upper extremity tie knot or bow scale	The scale which represents the extent the participant is able to tie a knot or a bow, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55111	C55111	Quality of Life - Upper extremity tie knot or bow scale	The scale which represents the extent the participant is able to tie a knot or a bow, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55111	C55111	Quality of Life - Upper extremity tie knot or bow scale	The scale which represents the extent the participant is able to tie a knot or a bow, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized
F2024-C55111	C55111	Quality of Life - Upper extremity tie knot or bow scale	The scale which represents the extent the participant is able to tie a knot or a bow, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Epidemiology
F2024-C55111	C55111	Quality of Life - Upper extremity tie knot or bow scale	The scale which represents the extent the participant is able to tie a knot or a bow, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55113	C55113	Quality of Life - Upper extremity lift ten pounds above shoulder scale	The scale which represents the extent the participant was able to lift ten pounds above their shoulder, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Concussion/Mild TBI
F2024-C55113	C55113	Quality of Life - Upper extremity lift ten pounds above shoulder scale	The scale which represents the extent the participant was able to lift ten pounds above their shoulder, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F2024-C55113	C55113	Quality of Life - Upper extremity lift ten pounds above shoulder scale	The scale which represents the extent the participant was able to lift ten pounds above their shoulder, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Comprehensive
F2024-C55113	C55113	Quality of Life - Upper extremity lift ten pounds above shoulder scale	The scale which represents the extent the participant was able to lift ten pounds above their shoulder, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Patient-Reported outcomes Measurement Information System (PROMIS) Upper Extremity Domain	True	Traumatic Brain Injury	Acute Hospitalized

Displaying 12526 - 12550 of 12871

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.