CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0320-C18730	C18730	Lab specimen other text	The free-text field related to 'Lab specimen type' specifying other text. Type of specimen collected for the laboratory test	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Comprehensive
F0320-C18730	C18730	Lab specimen other text	The free-text field related to 'Lab specimen type' specifying other text. Type of specimen collected for the laboratory test	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0320-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Comprehensive
F0320-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0320-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Concussion/Mild TBI
F0320-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Epidemiology
F0320-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Traumatic Brain Injury	Acute Hospitalized
F0328-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02401	C02401	Brain atrophy encephalomalacia result	Result of assessment of brain atrophy or encephalomalacia, defined as loss of tissue volume over time due to cell death or shrinkage.	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02401	C02401	Brain atrophy encephalomalacia result	Result of assessment of brain atrophy or encephalomalacia, defined as loss of tissue volume over time due to cell death or shrinkage.	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02402	C02402	Brain atrophy encephalomalacia anatomic site	Anatomic site of the brain atrophy/encephalomalacia	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02402	C02402	Brain atrophy encephalomalacia anatomic site	Anatomic site of the brain atrophy/encephalomalacia	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02403	C02403	Brain swelling extent type	Extent of the brain swelling	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02403	C02403	Brain swelling extent type	Extent of the brain swelling	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02404	C02404	Brain swelling status	Status of brain swelling in participant/subject	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02404	C02404	Brain swelling status	Status of brain swelling in participant/subject	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02405	C02405	Brain swelling anatomic site	Anatomic site of the brain swelling	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02405	C02405	Brain swelling anatomic site	Anatomic site of the brain swelling	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02406	C02406	Cervicomedullary junction or brainstem injury type	Extent of the cervicomedullary junction/brainstem injury	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02406	C02406	Cervicomedullary junction or brainstem injury type	Extent of the cervicomedullary junction/brainstem injury	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02407	C02407	Cervicomedullary junction or brainstem injury severity status	Status of injuries typically occurring in the setting of crush or distraction forces which cause disruption in the brainstem and/or cervicomedullary junction	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive
F0328-C02407	C02407	Cervicomedullary junction or brainstem injury severity status	Status of injuries typically occurring in the setting of crush or distraction forces which cause disruption in the brainstem and/or cervicomedullary junction	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02408	C02408	Cervicomedullary junction or brainstem injury anatomic site	Anatomic site of the cervicomedullary junction/ brainstem injury	Supplemental	Imaging	False	Traumatic Brain Injury	Epidemiology
F0328-C02408	C02408	Cervicomedullary junction or brainstem injury anatomic site	Anatomic site of the cervicomedullary junction/ brainstem injury	Supplemental	Imaging	False	Traumatic Brain Injury	Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.