CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0319-C01570	C01570	Intracranial pressure catheter revised indicator	Indicator of whether the intracranial pressure (ICP) catheter was revised due to problems with ICP monitoring which may lead to inaccurate interpretation of measured values	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Concussion/Mild TBI
F0319-C01570	C01570	Intracranial pressure catheter revised indicator	Indicator of whether the intracranial pressure (ICP) catheter was revised due to problems with ICP monitoring which may lead to inaccurate interpretation of measured values	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Epidemiology
F0319-C01571	C01571	Intracranial pressure catheter anatomic site	Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Epidemiology
F0319-C01571	C01571	Intracranial pressure catheter anatomic site	Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Acute Hospitalized
F0319-C01571	C01571	Intracranial pressure catheter anatomic site	Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0319-C01571	C01571	Intracranial pressure catheter anatomic site	Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Comprehensive
F0319-C01571	C01571	Intracranial pressure catheter anatomic site	Anatomic site where the intracranial pressure (ICP) catheter is implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Concussion/Mild TBI
F0319-C01572	C01572	Intracranial pressure device type	Type of intracranial pressure (ICP) device implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Concussion/Mild TBI
F0319-C01572	C01572	Intracranial pressure device type	Type of intracranial pressure (ICP) device implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Epidemiology
F0319-C01572	C01572	Intracranial pressure device type	Type of intracranial pressure (ICP) device implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Acute Hospitalized
F0319-C01572	C01572	Intracranial pressure device type	Type of intracranial pressure (ICP) device implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0319-C01572	C01572	Intracranial pressure device type	Type of intracranial pressure (ICP) device implanted in the participant/subject	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Comprehensive
F0319-C01573	C01573	Intracranial pressure measurement	Measurement of intracranial pressure (ICP), the amount of pressure that the cranium exerts on brain tissue, the brain's blood volume, and cerebrospinal fluid	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Comprehensive
F0319-C01573	C01573	Intracranial pressure measurement	Measurement of intracranial pressure (ICP), the amount of pressure that the cranium exerts on brain tissue, the brain's blood volume, and cerebrospinal fluid	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Concussion/Mild TBI
F0319-C01573	C01573	Intracranial pressure measurement	Measurement of intracranial pressure (ICP), the amount of pressure that the cranium exerts on brain tissue, the brain's blood volume, and cerebrospinal fluid	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Epidemiology
F0319-C01573	C01573	Intracranial pressure measurement	Measurement of intracranial pressure (ICP), the amount of pressure that the cranium exerts on brain tissue, the brain's blood volume, and cerebrospinal fluid	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Acute Hospitalized
F0319-C01573	C01573	Intracranial pressure measurement	Measurement of intracranial pressure (ICP), the amount of pressure that the cranium exerts on brain tissue, the brain's blood volume, and cerebrospinal fluid	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0319-C01574	C01574	Intracranial pressure maximum daily measurement	Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0319-C01574	C01574	Intracranial pressure maximum daily measurement	Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Comprehensive
F0319-C01574	C01574	Intracranial pressure maximum daily measurement	Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Concussion/Mild TBI
F0319-C01574	C01574	Intracranial pressure maximum daily measurement	Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Epidemiology
F0319-C01574	C01574	Intracranial pressure maximum daily measurement	Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Acute Hospitalized
F0319-C01575	C01575	Intracranial pressure mean daily measurement	Mean measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Acute Hospitalized
F0319-C01575	C01575	Intracranial pressure mean daily measurement	Mean measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0319-C01575	C01575	Intracranial pressure mean daily measurement	Mean measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period	Supplemental	Intracranial Pressure (ICP) Monitoring	False	Traumatic Brain Injury	Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.