CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1152-C52601	C52601	Medical history transient ischemic attack recency rate	The element related to the recency of transient ischemic attacks (TIAs) the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52603	C52603	Medical history migraine active last year indicator	The indicator related to the participant/subject having had an active migraine within the last year	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52604	C52604	Medical history carotid endarterectomy anatomic site	The element related to the location of a carotid endarterectomy the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52605	C52605	Medical history carotid artery stenting anatomic site	The element related to the location of carotid artery stenting the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52617	C52617	Head trauma result type	The element related to the result of head trauma	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52618	C52618	Medical history neck trauma recency rate	The element related to the recency of neck trauma	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52619	C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52620	C52620	Medical history atrial fibrillation other cause text	The free-text field related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52621	C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52622	C52622	Medical history cardiac catheterization recency rate	The element related to the recency of cardiac catheterization the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52623	C52623	Aortic thoracic aneurysm specify text	The free-text field related to the type of aortic or thoracic aneurysm	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52624	C52624	Hypertension first diagnosed age value	Free-text field related to the age hypertension was first diagnosed	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52693	C52693	High cholesterol treatment type	Type of treatment for high blood cholesterol	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52695	C52695	Cancer diagnosis type	The element related to the type of cancer diagnosis the participant/subject has or had	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52696	C52696	Infection within two weeks type	The element related to the type of infection(s) within the last two weeks the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52697	C52697	Infection within two weeks other text	The free-text field related to the type of infection(s) within the last two weeks the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52699	C52699	Sickle cell anemia blood transfusion treatment indicator	The indicator related to whether blood transfusions are used for treatment for sickle cell anemia	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52701	C52701	Bleeding disorder type text	Free-text field related to the type of bleeding disorder	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52702	C52702	Connective tissue disease other type text	The free-text field related to other type of connective tissue disease	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52703	C52703	Sleep apnea type text	The free-text field related to the type of sleep apnea	Supplemental	Medical History	False	Stroke	Stroke
F1152-C52706	C52706	Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator	The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)	Exploratory	Medical History	False	Stroke	Stroke
F1152-C52709	C52709	Menopause begin age value	The age at which menopause began for the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.