CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 801 - 825 of 1547
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58805 Pre-hospital stroke screen tool type

The stroke screen tool used to determine stroke status by EMS personnel

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58806 Pre-hospital stroke screen tool other text

The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58807 Pre-hospital stroke screen tool outcome status

The outcome status of the pre-hospital stroke screen used

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58808 Pre-hospital severity scale type

The stroke severity scale used to determine stroke severity before hospital intake

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58809 Pre-hospital severity scale type other text

The free-text field related to "Pre-hospital severity scale type" specifying other text

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58810 Pre-hospital large vessel occlusion indicator

Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58811 Pre-hospital severity scale total score

The total score of the severity scale, if completed

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58812 Pre-hospital severity scale not documented status

Indicates if a severity scale was not documented

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Stroke Types and Subtypes False Stroke Stroke
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58893 Clinical stroke time based ischemic stroke laterality type

Indicate the laterality of the ischemic stroke

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58894 Clinical stroke time based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58895 Clinical stroke tissue based ischemic stroke laterality type

Indicate the laterality of the ischemic stroke

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58896 Clinical stroke tissue based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58898 Causative Classification System (CCS) - large artery atherosclerosis phenotype status

The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58899 Causative Classification System (CCS) - cardiac embolism phenotype status

The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58901 Causative Classification System (CCS) - small artery occlusion phenotype status

The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58902 Causative Classification System (CCS) - other uncommon cause phenotype status

The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58904 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - atherothrombosis grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58907 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - small vessel grade

The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of small-vessel disease (S)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58908 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade

The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58909 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - other grade

The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58910 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade

The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58911 Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type

Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58912 Embolic stroke of undetermined source (ESUS) - criteria category

The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
Displaying 801 - 825 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.