CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14244 Subarachnoid hemorrhage etiology type

Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed

Supplemental Stroke Types and Subtypes Stroke Stroke
C14245 Hunt and Hess scale

This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival

Supplemental Stroke Types and Subtypes Stroke Stroke
C14246 Fisher scale

Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging

Supplemental Stroke Types and Subtypes Stroke Stroke
C14247 Modified fisher scale

Modified Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging

Supplemental Stroke Types and Subtypes Stroke Stroke
C14248 Ogilvy subarachnoid hemorrhage grade

Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained

Supplemental Stroke Types and Subtypes Stroke Stroke
C14249 Subarachnoid hemorrhage interhemispheric fissure score

Subarachnoid hemorrhage column scale (Hijdra) for the interhemispheric fissure score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14250 Subarachnoid hemorrhage Sylvian fissure lateral part score

SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14251 Subarachnoid hemorrhage basal part score

SAH Volume Scale (Hijdra) - Basal part left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14252 Subarachnoid hemorrhage suprasellar cistern score

SAH Volume Scale (Hijdra) - Suprasellar cistern left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14253 Subarachnoid hemorrhage ambient cistern score

SAH Volume Scale (Hijdra) - Ambient cistern left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14254 Subarachnoid hemorrhage quadrigeminal cistern score

SAH Volume Scale (Hijdra) - Quadrigeminal cistern score

Supplemental Stroke Types and Subtypes Stroke Stroke
C14255 Subarachnoid hemorrhage volume total measurement

Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures

Supplemental Stroke Types and Subtypes Stroke Stroke
C14256 World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale

World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale

Supplemental Stroke Types and Subtypes Stroke Stroke
C14257 Childhood stroke type

Indicates the type of clinical stroke suffered by the child

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14258 Perinatal stroke type

Indicates the type of clinical stroke suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14259 Pediatric Stroke Classification (PSC) - sub type

Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype

Supplemental Stroke Types and Subtypes Stroke Stroke
C14260 Sebire-International Pediatric Stroke Study (IPSS) - sub type

The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14261 Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - standard primary acute sub type

Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: acute - all patients with defined childhood arterial ischemic stroke will be classified into a single acute primary category, at the time of initial diagnosis (within 1 month of presentation)

Supplemental Stroke Types and Subtypes Stroke Stroke
C14263 Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type

Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy

Supplemental Stroke Types and Subtypes Stroke Stroke
C14265 NIH Ischemic Perinatal Stroke (IPS) - sub type

Subtype based on the Ischemic Perinatal Stroke (IPS) Workshop sponsored by NIH in 2007

Supplemental Stroke Types and Subtypes Stroke Stroke
C14266 Sophia vessel sub type

Sophia classification of stroke subtype by vessel affected

Supplemental Stroke Types and Subtypes Stroke Stroke
C14267 Sophia timing sub type

Sophia classification of stroke subtype by timing of stroke

Supplemental Stroke Types and Subtypes Stroke Stroke
C14268 Sophia time detection type

Time of detection of the stroke event in the participant/subject

Supplemental Stroke Types and Subtypes Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14270 Sophia stroke vessels affected type

Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
Displaying 251 - 275 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.