CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2177-C22338	C22338	Laboratory procedure anterior pituitary function follicular stimulating hormone plasma value	The value related to concentration of follicular stimulating hormonr (FSH) in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22339	C22339	Laboratory procedure anterior pituitary function insulin-like growth factor-1 baseline plasma value	The value related to baseline concentration of insulin-like growth factor-1 (IGF-1) in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22341	C22341	Laboratory procedure anterior pituitary function menstrual cycle time type	The type related to cycle time of the menstrual the female subject/participant	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22342	C22342	Laboratory procedure posterior pituitary function copeptin plasma value	The value related to concentration of copeptin in the plasma	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22344	C22344	Laboratory procedure posterior pituitary function fluid deprivation desmopressin acetate test result	Result of the fluid deprivation test with DDAVP	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22346	C22346	Laboratory procedure sympathetic nervous function norephrine supine plasma value	The value related to concentration of plasma norepinephrine when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22348	C22348	Laboratory procedure sympathetic nervous function norephrine seated standing plasma value	The value related to concentration of plasma norepinephrine when participant/subject is seated or standing	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22349	C22349	Laboratory procedure renin aldosterone function renin supine plasma value	The value related to concentration of plasma renin when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22350	C22350	Laboratory procedure renin aldosterone function renin seat stand plasma value	The value related to concentration of plasma renin when participant/subject is seated or standing	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22352	C22352	Laboratory procedure renin aldosterone function aldosterone supine serum value	The value related to concentration of serum aldosterone when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22353	C22353	Laboratory procedure renin aldosterone function aldosterone seat stand serum value	The value related to concentration of plasma renin when participant/subject is seated or standing	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C06071	C06071	Pain interfere mood scale	Scale that evaluates to what extent pain has interfered with the participants mood	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22801	C22801	Pain last week day count	The number of days the participant has experienced pain in the last week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22802	C22802	Pain worst intensity past week scale	Scale for the worst pain intensity in the past week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22803	C22803	Pain manageable last week day count	Number of days the participant had manageable pain in the last week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22805	C22805	Pain average duration	How long the participant's pain usually lasts	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22806	C22806	Pain most intense day time period type	Time of day the participant's pain is most intense	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22807	C22807	Injury level dynamic light touch response type	The type of response related to dynamic light touch at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22808	C22808	Injury level dynamic light touch other text	Free-text field to indicate what other type of response the participant experiences from dynamic light touch at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22809	C22809	Injury level dynamic light touch allodynia intensity scale	The scale related to intensity if allodynia for dynamic light touch at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22810	C22810	Injury below level dynamic light touch response type	The type of response related to dynamic light touch below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22811	C22811	Injury below level dynamic light touch other text	Free-text field to indicate what other type of response the participant experiences from dynamic light touch below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.