CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1719-C19113	C19113	Upper extremity surgery right osteotomy radius performed indicator	The indicator for the surgical procedure of the restoration of the right radius in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19114	C19114	Upper extremity surgery left osteotomy radius performed indicator	The indicator for the surgical procedure of the restoration of the left radius in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19115	C19115	Upper extremity surgery right osteotomy ulnar performed indicator	The indicator for the surgical procedure of the restoration of the right ulnar in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19116	C19116	Upper extremity surgery left osteotomy ulnar performed indicator	The indicator for the surgical procedure of the restoration of the left ulnar in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19117	C19117	Upper extremity surgery right osteotomy wrist performed indicator	The indicator for the surgical procedure of the restoration of the right wrist in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19118	C19118	Upper extremity surgery left osteotomy wrist performed indicator	The indicator for the surgical procedure of the restoration of the left wrist in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19119	C19119	Upper extremity surgery right osteotomy fingers/thumb performed indicator	The indicator for the surgical procedure of the restoration of the right fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19120	C19120	Upper extremity surgery left osteotomy fingers/thumb performed indicator	The indicator for the surgical procedure of the restoration of the left fingers/thumb in an Osteotomy with or without rotation and/or Anthrodesis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19121	C19121	Upper extremity surgery right implantable FES performed indicator	The indicator for surgical procedure on the right side with an Implantable FES	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19122	C19122	Upper extremity surgery left implantable FES performed indicator	The indicator for surgical procedure on the left side with an Implantable FES	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19123	C19123	Upper extremity surgery right other performed indicator	The indicator for other surgical procedure on the right side	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19124	C19124	Upper extremity surgery left other performed indicator	The indicator for other surgical procedure on the left side	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F1721-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Other Investigational Treatments	False	Spinal Cord Injury	Spinal Cord Injury
F1721-C19125	C19125	Patient participant interventional clinical research study trial enrollment indicator	Indicator for enrollment of patients/participants in interventional clinical research studies/trials	Supplemental	Other Investigational Treatments	False	Spinal Cord Injury	Spinal Cord Injury
F1721-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	Supplemental	Other Investigational Treatments	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.