CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0833-C06435	C06435	Neuro-Musculoskeletal condition type	Type of neuro-musculoskeletal condition experienced or diagnosed	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06436	C06436	Neuro-Musculoskeletal condition anatomic site	Anatomic site of the neuro-musculoskeletal condition experienced or diagnosed	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06439	C06439	Fracture date	Date (and time, if applicable and known) the fracture occurred at each site	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06440	C06440	Fragility fracture indicator	Indicator of whether the fracture is a fragility fracture. Fragility fractures result from low force injuries insufficient to fracture normal bone	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06447	C06447	Spasticity spasm indicator	Indicator of the presence of spasticity/spasms	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06448	C06448	Spasticity spasm treat last four week indicator	Indicator of whether the person with SCI has received any kind of treatment for spasticity/spasms within the last four weeks	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06449	C06449	Heterotopic ossification detection method type	Type of method used to document the heterotopic ossification	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06450	C06450	Neuromuscular scoliosis indicator	Indicator of any appreciable observable lateral deviation in the normally straight vertical line of the spine due to the sequelae of spinal cord injury (SCI)	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06451	C06451	Neuromuscular scoliosis assessment method type	Type of method(s) used to determine the presence of neuromuscular scoliosis	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06454	C06454	Musculoskeletal other problem text	Text describing the presence of any other musculoskeletal problems not described elsewhere	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06455	C06455	Musculoskeletal challenge interfere activity scale	Scale for how the musculoskeletal challenges interfere with the participant's daily activities of daily livings including transfers, walking, dressing, and showers	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C18174	C18174	Pre-exist diagnosis location text	Text describing the diagnosis and location of the pre-existing neuro-musculoskeletal history of either the spin and spinal cord, degenerative spine disorders, or systemic neuro-degenerative disorders	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C18798	C18798	Heterotopic ossification detection method other text	The free-text field related to 'Heterotopic ossification detection method type' specifying other text. Type of method used to document the heterotopic ossification	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19202	C19202	Pre spinal cord lesion neuro-musculoskeletal history type	Type of neuro-musculoskeletal history prior to spinal cord lesion	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19203	C19203	Pre-existing congenital deformity specify diagnosis name	Specifies name of pre-existing congenital deformity of the spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19204	C19204	Pre-existing congenital deformity specify anatomic site	Anatomic site of pre-existing congenital deformity of spine and spinal cord	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06460	C06460	Non traumatic spinal cord injury etiology classification axis 1 level 1 category	The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06461	C06461	Non traumatic spinal cord injury etiology classification axis 1 level 2 category	The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06462	C06462	Non traumatic spinal cord injury onset type	The type of onset timeframe over which the non-traumatic spinal cord injury developed	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06463	C06463	Non traumatic spinal cord injury iatrogenic indicator	Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06464	C06464	Non traumatic spinal cord injury etiology axis 1 level 3 category	The category of level 3 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.