CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 3776 - 3800 of 3808

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2913-C21288	C21288	Quality of Life - Force awake morning past week scale	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C21289	C21289	Quality of Life - Bad dream sleep trouble past week scale	The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21289	C21289	Quality of Life - Bad dream sleep trouble past week scale	The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C21289	C21289	Quality of Life - Bad dream sleep trouble past week scale	The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C21290	C21290	Quality of Life - Awake pain past week scale	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C21290	C21290	Quality of Life - Awake pain past week scale	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21290	C21290	Quality of Life - Awake pain past week scale	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C21291	C21291	Quality of Life - Cancel friend activity bad sleep past week scale	The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C21291	C21291	Quality of Life - Cancel friend activity bad sleep past week scale	The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21291	C21291	Quality of Life - Cancel friend activity bad sleep past week scale	The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C21292	C21292	Quality of Life - Middle night physical tension past week scale	The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C21292	C21292	Quality of Life - Middle night physical tension past week scale	The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C21292	C21292	Quality of Life - Middle night physical tension past week scale	The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54691	C54691	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale	Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C54691	C54691	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale	Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2919-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2919-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General

Displaying 3776 - 3800 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.