CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 3751 - 3775 of 3808

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2908-C21957	C21957	Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale	Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21957	C21957	Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale	Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21959	C21959	Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale	Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21959	C21959	Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale	Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21960	C21960	Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale	Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21960	C21960	Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale	Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21961	C21961	Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale	Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21961	C21961	Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale	Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21962	C21962	Pediatric Quality of Life Inventory(PedsQL) - Total score	Total Score as a part of Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21962	C21962	Pediatric Quality of Life Inventory(PedsQL) - Total score	Total Score as a part of Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21964	C21964	Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale	Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21964	C21964	Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale	Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21965	C21965	Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale	Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2908-C21965	C21965	Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale	Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2913-C20816	C20816	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C20816	C20816	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C20816	C20816	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2913-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Stroke
F2913-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21288	C21288	Quality of Life - Force awake morning past week scale	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21288	C21288	Quality of Life - Force awake morning past week scale	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)

Displaying 3751 - 3775 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.